06-28-2018, 08:07 PM   #1
Join Date: Mar 2017
Location: South Carolina
Sudden Movements

So, I was diagnosed with mild UC November 2016, and ever since that I have only gone downhill. Humira did nothing for me, and Iím trying to get approval for entyvio. Lately I get up like 5-6 times a night to go to the bathroom, and itís getting ridiculous. I find that if Iím sleeping on one side, and quickly shift to the other I have to run to the bathroom. Itís like my colon is sleeping and if I shift over to the other side I just woke it up. Itís even if Iím not sleepainít, if Iím laying down and just move to quickly I just have to go. Anyone else deal with this?

Just had my 3rd colonoscopy, and now itís severe UC. If that helps anything
08-19-2018, 10:36 PM   #2
Join Date: Aug 2018
Location: Georgia
Exact same thing happening with me.

Diagnosed with severe ulcerative pancolitis last month. Currently on 40mg of prednisone daily. About to start remicade infusions next week. Really hoping it helps.

I think I wake up to run to the bathroom every hour at night. I feel your pain and we can only hope things will get better.


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