12-26-2011, 08:13 PM   #1
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Join Date: Dec 2011
Location: Manchester, United Kingdom
Nose sore - cold sore?


I was diagnosed with crohns disease in 2001 and have coped quite well with the disease. However, this year I have been suffering a relapse (since May) and still feeling generally unwell.

Yesterday my nose started to feel sore, was very red and swollen. It now appears that I have a large cold sore all over the tip of my nose and it is spreading more and more by the hour. I have blisters, it remains very red, very sore and I know it will begin to scab over in the next few days (if it stops spreading!) Feeling very miserable about it and don't really want to leave the house!!

I have had one of these sores before and it took over my whole nose over a period of 3-4 weeks... It did not react to cold sore remedies at all and they almost seemed to irritate it more. I have been to the doctor's walk in centre today and explained the situation about my crohns disease and how I do not believe I have a cold sore, but the nurse would not believe me. She has given me oral cold sore tablets but I am not confident they will make any difference. Does anybody know what these sores are or how to treat them? With it being the festive period I cannot get hold of my specialist or GP so I'm unsure what to do since not many people have an understanding of crohns... I am hoping I will be able to stop it from getting as awful as last time, surely there must be something I can put on it?

Any advice would be greatly appreciated!!!
12-26-2011, 10:34 PM   #2
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Greetings and welcome

Fortunately or unfortunately, you are not alone.

If I was in your position, I would personally take a quality B complex vitamin (a vitamin that contains a bunch of the B vitamins) as there are a variety of B vitamin deficiencies that can cause sores in the orofacial region and Crohnies are at great risk for such deficiencies.
It's good to be back
12-27-2011, 04:13 AM   #3
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Ugh, poor you. I know what it's like. I had one that took over one side of my nose and all round my mouth. I felt like wearing a paper bag over my head when I had to go out. That was when I was flaring badly and still undiagnosed, so probably very run down.
How are they treating this recent flare? Are you seeing any improvement?
Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
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Helen x
12-27-2011, 07:27 AM   #4
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Location: New York

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Yes - I have gotten them on and off - really, really SUCK!.....I try to use cold sore cream (Zovirax is one) - which helps to dry everything pu a little quicker, but mostly it is a waiting game until it heals up on its' own.....

Ditto the wanting to wear a paper bag! That happened a couple years ago now when I had a bout of strep, the next day my entire nose, both nostrils in/out had broken out in sores.....AND I still had to go to work!

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
12-27-2011, 08:17 AM   #5
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Join Date: Dec 2011
Location: Manchester, United Kingdom
Thanks for the advice, doesn't sound like there is a lot I can do but hope it gets better soon!! I'll try some vitamins, haven't been eating very well for the past 6 months with my flare up so it could be that I am lacking in vitamins. Cold sore remedies don't tend to do much and they seemed to make it spread more last time, so I am reluctant to use them again.

Luckily I'm not in work at the moment as it's Christmas holidays but also depressing that I don't want to leave the house now so wasting my holidays!!

For this flare up, I was given an 10 week course of steroids in July but they didn't seem to do much and the blood tests were still showing high levels of inflammation. Since then, I have started taking azathioprine, as well as the asacol I was already on, but have been told they could take a number of months to kick in properly and I'm still only on 75mg so quite a small dose. Have been feeling very sick since starting the azathioprine and still in a lot of pain. I might need to have another course of steroids if I am no better in the next few weeks, but they mess up sleeping patterns etc I hate taking them. I am going to see a nutritionist in a few weeks too to see if there are any special diets I can try so hoping I will start to feel better soon!!
02-28-2013, 11:53 AM   #6
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Best of luck with the nutritionist. Let us know what they say!
12-14-2015, 11:57 PM   #7
Crohn's gal since 1989
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I was getting a lot of sores around my nose and corner of my mouth. Turns out I was deficient in B2/Riboflavin. A B2 supplement helped this go aay😊

Diagnosed 1989
Asacol,Pentasa and Entocort (didn't work in 2005 and didn't work now)
Done with Prednisone 09/07/13
Azathioprine (Imuran)150mg no longer working
Developed allergic reaction to Humira injection!
Currently trying Remicade with Methotrexate
Still trying to get into remission!

Ileocecol resection surgery
September 14th, 2013.
55cm small bowel removed!

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