After a 2 year journey of hospital stays and symptoms, my 11 year old son is about to be officially diagnosed next week with an MRI to peek at his entire tract and mainly the small intestine. He recently had a 3 night hospital stay after I took him to the ER for severe diarrhea, dehydration and stomach pain. It took 2 days to get him re-hydrated and back to baseline and they did an upper and lower endoscopy with biopsies taken throughout. 2 stomach ulcers were seen and the biopsies came back with eosinophils throughout his entire GI tract and his fecal calprotein levels are very high (I'm not sure the exact number). I'm sure there are more details that I'm leaving out that are important, but alas I'm not an MD.
His gastroenterologist sent us to an allergist this week to make sure that food allergies were not contributing to his issues and he was tested for every allergen known to man - nothing reactive. He also had a celiac panel done, negative.
In the last 60 days he has lost about 20lbs and just looking at him I can tell he's a sick guy. He's not currently complaining too much of pain or other symptoms really but then again I believe he's trying to downplay what is going on and his symptoms because he hates the hospital. He did not do too well after having General anesthesia for his endoscopies. He also is barely eating - I'm trying the best I can and he is drinking some ensure drinks daily but the doctor seems hopeful that his medicine that he's just started on will help improve his appetite. Here's what he is taking:
Prilosec (for the ulcers)
Apriso 0.375gm - 3 capsules every morning
Budesonide 3mg - 3 capsules/day for a week, 2 capsules/day for a week and then 1 a day.
He also takes concerta daily (which he has since he was 8) for ADHD
I'd definitely appreciate any advice as this is an overwhelming new journey for us and I'm worried about my guy.
Thanks for listening!
His gastroenterologist sent us to an allergist this week to make sure that food allergies were not contributing to his issues and he was tested for every allergen known to man - nothing reactive. He also had a celiac panel done, negative.
In the last 60 days he has lost about 20lbs and just looking at him I can tell he's a sick guy. He's not currently complaining too much of pain or other symptoms really but then again I believe he's trying to downplay what is going on and his symptoms because he hates the hospital. He did not do too well after having General anesthesia for his endoscopies. He also is barely eating - I'm trying the best I can and he is drinking some ensure drinks daily but the doctor seems hopeful that his medicine that he's just started on will help improve his appetite. Here's what he is taking:
Prilosec (for the ulcers)
Apriso 0.375gm - 3 capsules every morning
Budesonide 3mg - 3 capsules/day for a week, 2 capsules/day for a week and then 1 a day.
He also takes concerta daily (which he has since he was 8) for ADHD
I'd definitely appreciate any advice as this is an overwhelming new journey for us and I'm worried about my guy.
Thanks for listening!