Hi all! So I’ve kinda stumbled along this forum amongst my hours and hours of researching after my son was dx with Crohn’s 5 months ago. My son, Ely, is the first in our family to have Crohn’s and the dx came as quite a surprise to us (now in hindsight, could maybe have picked up on it sooner). Ely was originally out on Prednisone after his scopes and got inflammation down and since then we have been managaing him with SCD diet alone. He is virtually symptom free and has been very good with compliance although I don’t now if he will adhere to the strictness of the diet as he gets older??
My husband and I are health care providers and have been seeking AMAT therapy from the beginning. Sorry for the long post but looking for advice, help, support, pros and cons from anyone who has experienced AMAT therapy themselves.
We do have the meds currently being sent to us. Ely will be on clarithromycin, clofazimine and Rifabutin. If anyone has experience with these meds, I would love to hear any first hand accounts whether good or bad!
Thank you so much!!
My husband and I are health care providers and have been seeking AMAT therapy from the beginning. Sorry for the long post but looking for advice, help, support, pros and cons from anyone who has experienced AMAT therapy themselves.
We do have the meds currently being sent to us. Ely will be on clarithromycin, clofazimine and Rifabutin. If anyone has experience with these meds, I would love to hear any first hand accounts whether good or bad!
Thank you so much!!