Hello-
So I am finally joining this forum after years of finding useful information from various contributors. I am hoping that this will be a source of support for me in my Crohn's journey, and that I may have something to offer in return.
My Story:
I was diagnosed with moderate/severe Ulcerative Colitis when I was 14 years old. I had a colonoscopy and found fairly severe inflammation on my left lower side. I was prescribed with some anti-inflammatory drug that I cannot remember, and went on the Specific Carbohydrate Diet.
I went off and on prednisone for the next year, dealing with ALL of the side effects (which was, needless to say, not great for my self confidence) and still not going into full remission.
As a 16 year old, I was still bleeding a good deal and had taken myself off of all medication because of my dealings with depression and anxiety. This was not crazy smart. I became SEVERELY dehydrated, was having about 12-14 bowel movements a day that were basically just blood. I was 5 ft 7in and 100 lbs and as white as a ghost. I was admitted to the hospital for 4 days while they pumped me full of steroids, fluids, and a blood transfusion.
The past two years I have gone through severe anemia, weight management, and medication negotiation. I have been re-diagnosed with Crohn's, Barrows Esophagus, stomach ulcers, and more inflammation in my right side.
I am now in a bad flair up, still attempting a version of the SCD, taking Pantoprazole, Naltrexone, and Azathioprine, and trying to figure out if I should take Entocort in order to stop this bleeding and continue my college carrier.
I know this is a lot...but if any of you have thoughts or advice, I would love to hear it.
Thank you all for what you are doing on this forum.
May God bless you each with healing and wisdom.
-Olivia
So I am finally joining this forum after years of finding useful information from various contributors. I am hoping that this will be a source of support for me in my Crohn's journey, and that I may have something to offer in return.
My Story:
I was diagnosed with moderate/severe Ulcerative Colitis when I was 14 years old. I had a colonoscopy and found fairly severe inflammation on my left lower side. I was prescribed with some anti-inflammatory drug that I cannot remember, and went on the Specific Carbohydrate Diet.
I went off and on prednisone for the next year, dealing with ALL of the side effects (which was, needless to say, not great for my self confidence) and still not going into full remission.
As a 16 year old, I was still bleeding a good deal and had taken myself off of all medication because of my dealings with depression and anxiety. This was not crazy smart. I became SEVERELY dehydrated, was having about 12-14 bowel movements a day that were basically just blood. I was 5 ft 7in and 100 lbs and as white as a ghost. I was admitted to the hospital for 4 days while they pumped me full of steroids, fluids, and a blood transfusion.
The past two years I have gone through severe anemia, weight management, and medication negotiation. I have been re-diagnosed with Crohn's, Barrows Esophagus, stomach ulcers, and more inflammation in my right side.
I am now in a bad flair up, still attempting a version of the SCD, taking Pantoprazole, Naltrexone, and Azathioprine, and trying to figure out if I should take Entocort in order to stop this bleeding and continue my college carrier.
I know this is a lot...but if any of you have thoughts or advice, I would love to hear it.
Thank you all for what you are doing on this forum.
May God bless you each with healing and wisdom.
-Olivia
