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19 Year Old Daughter Just Diagnosed

Hi everyone! So happy to find this forum. My 19 year old daughter was just diagnosed with Crohn's, chronic active ileitis (?) and reflux esophagitis. We live in New Jersey and she is away at school in California. She started not feeling well this past March but her symptoms were severe headaches. She went to the health center at school and blood work revealed a very elevated SED rate (80). Being that her symptoms were headache (no gastric symptoms at all at that time) she was sent to a neurologist and had several MRIs and a spinal tap but nothing was ever found, although they did think at one point that she might have MS and/or Lyme's disease (both ruled out). She was put on Doxycycline in June for possible Lyme's and although she was supposed to stay on it for a month she stopped taking it after less than a week as that is when her gastric issues started. She went back to school at the end of July and things started getting worse. Constant diarrhea and stomach pain and she lost 15 pounds in a month. She couldn't get to see a gastro doctor at school for 5 weeks so I brought her home to NJ 10 days ago and we saw her pediatrician (who did blood work which showed she is anemic and lactose-intolerant) and then a gastro doctor who performed a colonoscopy and endoscopy last Friday. She flew back to school on Sunday with 3 prescriptions (Flagyl, Entocort, Sulfasalazine), Nexium OTC and a probiotic, and today we got the results. We really liked the gastro doctor when we saw him for the consult and the colonoscopy/endoscopy but today when we called him for the results he was a little dismissive and when we asked what she should eat he just told us to Google "low residue diet" and Wikipedia "Crohn's"! So I've been online trying to research and that is how I found this forum. It is very difficult with her being so far away. She feels terrible and doesn't know what to eat or when she is going to start feeling better.

Thanks for listening and any support you can give to me and to her would be greatly appreciated!

Nadine
Mahwah, NJ

and

Jessie
Los Angeles, CA (University of Southern California)
 

DJW

Forum Monitor
Hi and welcome.

Sorry to hear your daughter has crohns. One thing I recommend is keeping a food and symptom journal to try and pinpoint problem foods. Others will be along soon.

It takes time to adjust to this disease.

Sending you and Jessie my support.
 

my little penguin

Moderator
Staff member
Sorry for the dx.
Few things sulfanazine or 5-Asa's are not typically enough to treat crohn's as a monotherapy.
But they are at the bottom of the pyramid of drugs so even though they are the least effective they have the least risk.
Next up is immunosuppressants (6-mp, Aza etc)...
Most start with these but some docs go top down
To get inflammation under control the fastest .
These would be biologics ( remicade humira etc).

Here is a paper on starting top down within three months of dx
And improved outcomes
http://www.globalacademycme.com/cli...-crohns/1912d260db81cea0b46dd5eee9134a23.html

A lot more research papers can be found here
http://www.crohnsforum.com/showthread.php?t=43002

Knowledge is power and crohn's has a steep learning curve where if you don't speak medical you will be required to make choices -that makes it harder.

As far as diet
It's hit or miss by person honestly
The only proven diet is EEN ( formula only no food) used to induce remission in kids instead of steriods. It is used for about 6-8 weeks while a maintence med is building up.
6-mp takes 3-4 months to build up and remicade takes about 6 weeks.

Some do better with low fiber some without gluten or milk.
Some like my son can't handle raw veggies but cooked are fine .
Most avoid seeds nuts and skins of fruits since these can irrate or sit in the intestine if its injuried.

Read up ask lots of questions and join us in the parents sections
Paging Tesscom clash maya
Who all have teenagers
 
Thanks for the info! My head is spinning but knowledge is definitely power so I will check out the links and I have already joined the parents of teens group (as you know, thanks for the welcome there!).

Nadine
 
Sending support to you here as well as the teen forum. MLP s right... best diet is trial & error and a food journal. I found Wikipedia & google searches made things worse. Sad a doc would tell you to use them. Search through the Crohns & Colitis Foundation of America & Crohns Colitis Canada which both have a lot of resources including videos & literature. People here are pretty resourceful too.

Are you going to focus her care in NJ or Cali? If you are having to do both I would suggest you get copies of reports/test/notes from each because chances are docs won't collaborate much together. Ask lots of questions. That is the best way you learn all this stuff.
 
@SupportiveMom, thanks! I was going to base her care in NJ, as she was not happy with the care or the doctors she dealt with at USC when they were trying to figure out what was going on last semester. I thought we could work with this doctor in NJ, who we both really liked when we met him last week and who said that he could treat her even with her being in CA. However, now with him telling us to Google and Wikipedia the disease and diet I am having second thoughts. He did tell me to come in to the office and speak with him so I will give him another chance but I have already looked for doctors in Los Angeles on the Doctor Directory on this forum. I found that Cedars Sinai in Los Angeles has an IBD Center that was highly recommended and the doctors are even on our insurance! I'm going to let my daughter decide what she wants to do. And I did find a lot of good info on the Crohn's and Colitis Foundation of America website, which I forwarded to her.

Nadine
 
So sorry to hear about your daughter's recent dx. It can seem very overwhelming in the beginning. This forum has some great info and members.
 
No dairy or red meat is easy for me as I have been vegan for almost two years but most of what I eat (salads, grains, beans, nuts) I have read is not good for her while she has so much inflammation (and the doctor also recommended a low residue diet). We also just found out she is lactose intolerant so dairy is out anyway and she has GERD too so that limits what she can eat as well. I do believe that a whole foods, plant-based diet is the healthiest diet and I hope that she can get to remission and then be able to follow that type of diet.
 

my little penguin

Moderator
Staff member
Again going to stress diet is very very indivualized .
DS was low on ferritin borderline anemic and specifically told to add red meat plus iron supplements. So please don't randomly pull things.
Keeping a food log can tell you what is her specific issues.
 

Tesscorm

Moderator
Staff member
So sorry your daughter has been diagnosed with crohns. As has been said, there is quite a bit to learn but, having the knowledge will help you and your daughter in dealing with her illness.

You've already been given some great advice above, so I'll try not to repeat the same things! :)

On diets, it is very individual so a journal may eventually help identify foods that help/hurt. While many do find relief with specific diets, know that foods do not trigger flares, however, certain foods can lessen or worsen symptoms. A low residue diet moves more easily through the intestinal system, requiring less work and is often recommended during flares. Do look into exclusive enteral nutrition - with children, it has comparable success rates at inducing remission as steroids (not sure of the success rate with adults??), no side effects and provides bowel rest. However, supplemental EN can also be very beneficial as it will provide her with nutrients while she is on a more limited diet (ie formula added to her diet). There are a number of types of formulas, as well as brands. Elemental is the easiest to digest, however, these are usually not 'drinkable' and must be used with an NG (naso-gastric tube), semi-elemental is commonly used (ie Peptamen) and, recent studies have shown polymeric formulas are as effective (Boost, Ensure). She can also use the shakes as a 'back-up' replacement meal, if she's ever not feeling well to eat properly. Exclusive and then supplemental EN were my son's treatements and, even now that he is using remicade, he continues to drink one to two Boost shakes per day. However, I'm not sure if these would be an issue with her lactose intolerance.

I would ask the GI what is the plan going forward. Testing/monitoring, how/when will he determine the medication is working and what will determine if it isn't. If he will be treating her from NJ, can he coordinate testing in CA? And, can he recommend/coordinate her care with a GI that is closer to her while she is in school?

Also encourage you to request copies of results.

But, please know that while it can seem overwhelming at the beginning, once your daughter is feeling better and successfully on a maintenance med, things can certainly go back to normal. :) My son is now in his second year of university, also out of town (although not so far) and is doing well with his studies, social activities, sports, etc.

:ghug:
 
No dairy or red meat is easy for me as I have been vegan for almost two years but most of what I eat (salads, grains, beans, nuts) I have read is not good for her while she has so much inflammation (and the doctor also recommended a low residue diet). We also just found out she is lactose intolerant so dairy is out anyway and she has GERD too so that limits what she can eat as well. I do believe that a whole foods, plant-based diet is the healthiest diet and I hope that she can get to remission and then be able to follow that type of diet.
I can relate to the situation, I was also diagnosed when I was 19 and had just started studying away from home in a different city.

You already got a lot of great answers above on medication and diet etc.

Here is my take on all this. First, unfortunately when you get the diagnosis how to manage Crohn's feels somehow overwhelming (or sometimes underwhelming so people ignore it...). This means, at least as far as I see it, that the first thing to do for pretty much everyone after diagnosis is to really read up lots and lots on the subject, including old threads on this forum, study results etc. That takes a while, days and weeks if done thoroughly.

Second, what people should understand is what Crohn's is and that any long term management of it only works through a combination of several things, a. short term medication dealing with immediate activity, b. Long term medication to be taken over years, c. an individualized diet, d. a change of the way of how one eats meals, e. no smoking of tobacco, f. reducing hard liquor consumption and eliminating binge drinking, g. (Debated by some but I believe it important) regular endurance sport, h. Stress relief and generally being in a calm and positive mood. Many people think they can manage Crohn's effectively with drugs alone while ignoring many other factors, while others think they can leave out drugs and concentrate on diet etc. I am not saying it can't work to stay in remission in the long term without any symptoms or problems at all without focusing on all these different factors, but I have made the experience that taking all these factors together has the greatest chance of success to doing well in the long run.

A few explanations on these different factors:
ad a. Short term meds are usually corticosteroids such prednisone or budesonide (entocort). Those should only be used in the short term as long term usage can lead to serious side effects. I understand she got entocort prescribed, it should be noted that this only works if the Crohn's is located in the lower part of the smaller intestine and upmost part of the colon.

Ad b. As explained by others above, the usually used 3 types of meds for Crohn's are pentasa (a variety of that is sulfalasine prescribed to her), immunosuppressive drugs and/or biologics. There are studies that Pentasa is little more effective, if at all, than a placebo when it comes to Crohn's as it primarily has a superficial effect on the inflammation and principally works in the colon and not in the smaller intestine where Crohn's is usually most active. In contrast, for UC patients who have the primarily affected area in the colon, pentasa is a very useful long term drug.

Having said that, the reason why modern medicine supports the view of using immunosuppressives and/or biologics pretty much for all patients diagnosed below the age of 30 with noticeable and ongoing inflammation is simply put to avoid scaring in the intestine from the inflammation and various other complications down the road.

Ad c. Very unfortunately, there is no clear diet specification for Crohn's patients. Very often some people tolerate things well that others can't tolerate at all. Usually a bland diet is recommended, or in other words everything that is "too" something isn't good, as in "too oily, too spicy, too fatty, too sweet, too salty, ...". Examples of pretty bad food for most people with active inflammation are popcorn, junk food burgers with lots of fatty sauce, oily fried foods, cheap microwave pizza etc." Or in other words everything people shouldn't really eat in the first place. Good foods are usually bland porridge, chicken noodle soup (not from a can...) etc. However, once inflammation is under control, usually most things can be tolerated well. I know you were asking about low residue diets, there is also SCD and no gluten diets etc., others can say how much they work, I have to admit these things never worked for me, I e.g. Need the fibre or I get into trouble.

I need to caution you about one thing you have said, being on a completely plant based vegan diet. Crohn's principle effect is inflammation in the intestine. This inflammation prevents nutritions being absorbed into the body, for instance protein but also quite a few other things such as vit D, B6, B12, minerals such as magnesium, calcium etc. A completely diary and meat free diet can even further worsen this malabsorption leading to all kinds of problems.

Ad d. How people eat. The usual advice is to eat smaller meals throughout the day instead of say just lunch and a huge dinner late at night. At least for me, the much more important factor is HOW I eat, that is a. The combination of things (e.g. Just soup for lunch might get me into trouble, while soup AND something solid works for me better) and b. whether I talk a lot while eating or eat rather fast or while having stress or in a rather hot environment etc. I know what I am saying is a but fuzzy, but that is how I have experienced things.

Ad e. And f., first medical marijuana helps (foremost because it calms people down, that is it contributes greatly to stress relief) but second, smoking is pretty bad for crohn's (and generally for anyone's health...). As to alcohol, your daughter is just 19 and at college, so she probably might be drinking quite some alcohol, all I can say is that generally it will get Crohn's patients into trouble. I don't have a problem with a beer or two or a glass of wine, but hard liquor and binge drinking is a big problem the next day for my crohn's activity.

Ad g. Sport. Some people on here might disagree, but at least for me that's the holy grail for keeping in remission long term. If I do endurance sport (where I actually sweat for a while...) 3-4 times a week, I do well with Crohn's as well. It's probably a combination of generally boosting health, stress relief and to some extent just shacking bowels up and down (as strange as that may sound). Anyway, when someone has active crohn's and active inflammation, sport is not recommended and usually doesn't work, but to keep in remission (that is, on e things are good) I recommend it.

Ad h. Lastly, stress relief. With "stress" what usually is bad is "bad stress" as in many things to worry about smashed over one's head in a short period of time. In contrast, at least for me, gold stress as in many things to do, but I like to do them, even if I need to work 16 hours a day, doesn't bother me much. Stress relief is a mental thing and for many people takes a long time to get to, some people try to augment stress relief through yoga, others through medical marijuana, others by just keeping calm generally or just lying down on a couch 20 minutes not thinking about anything. In my experience it is a key thing.

Anyway, this is now a rather long post. I hope it helps a bit.

P.S. If she is in California, my advice is that she has a good GI there. Especially at the beginning of having Crohn's she will be at a doctor's office quite often.
 
@Tesscorm and @alex_chris....thank you both for the very detailed and informative responses!

She is actually in the hospital overnight tonight for observation. She called me this morning and said that she didn't feel well and that she felt like she was having palpitations. Being that she just started on the meds, I was worried that she was having a bad reaction so I told her to go to the health center at school. I made some calls to try to get her in to see the doctors at the Inflammatory Bowel Disease Center at Cedars Sinai in Los Angeles and I was waiting for a call back when she called to tell me that the doctor at the health center knew one of the doctors at the IBD Center and that she should go to the emergency room and they would see her that way. They have her on IV fluids tonight and are talking about changing her meds. I will hopefully be able to talk to the doctor in the morning. I feel much better now that she will be treated out there and at a center that specializes in IBD.

Thank you all again for all of your support and I will keep you all posted.

Nadine (and Jessie)
 
There is an IBD specialist at USC Keck Medical Center named Dr. Caroline Hwang. My daughter use to go to dr. Marla Dubinsky at cedars sinai but she moved to mt sinai hospital in New York. But dr dubinsky recommended dr hwang. Your daughter can take the usc shuttle from campus to keck health center 2. It's next to USC Keck Hospital. She only sees patients on wed and Thursday afternoon I think. The only downside about her is I find it hard to communicate with her. I think she's busy teaching and doing research as well. I wouldn't see the doctors at the usc health center if possible.
 

Lady Organic

Moderator
Staff member
Hi Nadine,
sorry to ear about your daughter's story. mild palpitations, fast heart beat, anxiety sleep disturbance are quite common when using Cortico-steroids. If really too intense, i understand they 'll want to change them if that is the cause of her palpitations.

as a possible alternative to cortico-steroids or in combination with them, some posters suggested Enteral liquid diet. here is a thread I posted in which a video explains a case of a 19 year old with Crohns successfully using EEN.

http://www.crohnsforum.com/showthread.php?t=59797

The LOFFLEX diet is presented in this video, designed by a GI in UK, John Hunter. I also suggest you take a look at this recent preliminary study about another diet designed for IBD. its called IBD-AID, llok at table 2 for more precisions :

http://www.nutritionj.com/content/13/1/5

it can give some ideas on how to start along with the low residu diet the GI suggested. If your daughter can get the help of a IBD nutritionnist at the hospital, that would be awesome.

Unfortunately, not one medication, EEN or diet can work for everyone. It can take some time to find the best treatment plan for a patient. patience is often key. Spontaneous remission also can occur in CD, of course we all wish for that option :)
best to you.
 
@maile Thank you for the info. Unfortunately, Jessie is very familiar with Keck as she saw several doctors there and had lots of tests done last semester when they were trying to figure out why her SED rate was so high. It is the last place that she would want to go to again.

@Lady Organic Thank you for the info as well. I will check out the links but right now I am actually trying to get laundry done and bills paid as I am flying out to CA early tomorrow morning to be with Jessie. They ended up admitting her and she will be there probably until Monday or Tuesday. And Monday is her birthday :(. Not the way she planned on spending it but at least I will be there with her.
 
Again going to stress diet is very very indivualized .
DS was low on ferritin borderline anemic and specifically told to add red meat plus iron supplements. So please don't randomly pull things.
Keeping a food log can tell you what is her specific issues.
You can get plenty of iron from chicken and fish. I understand red meat is packed with iron but as a Crohns patient I would avoid it because of the high potential of contamination with E Coli and MAP.

Here's a recent case where 1.8 million pounds of ground beef were recalled because of E Coli contamination.

http://www.cbsnews.com/news/1-8-million-pounds-of-ground-beef-recalled-over-e-coli-contamination/

This is extremely common with ground beef because of the way the animals are slaughtered and packed. Lots of evidence pointing to E Coli possibly causing Crohns like symptoms coming out now.

http://www.sciencedaily.com/releases/2007/08/070807172136.htm

And of course there's the whole MAP thing. Everyone with Crohns needs to educate themselves on MAP.
 
I hope your daughter feels better soon. I think what helped my daughter was an elemental diet, compete all liquid diet, amino acid. During that time my daughter did not have any fever. Before that she had fevers and after she stopped the fevers came back for a few months, then stopped. But like someone commented, it allowed my daughters intestines to rest for those 3 weeks. Anyway, she's feeling fine right now on just Pentasa alone. I can't help but think that the elemental diet helped a lot. This summer, I'm going to put her on it again for a few weeks, just to let her intestines rest. she's never had to take steroids because of it. Put it in a cup with plastic wrap and then stick a straw in it. If you can't smell it, it's doable. I think she drank 6 or 7 cups a day but ask your doctor how many calories she needs to have a day. Take it as long as she's able to...the longer the better. In many foreign countries, that's the first thing that's prescribed.
 

Lady Organic

Moderator
Staff member
I know its very popular in Israel and Japan, a bit in UK too, Maile where else do you know EEN is favoured as a first line treatment in adult instead of steroids?

whats the name of your daughter's elemental diet?
 
When my daughter's pediatric gastroenterologist put my daughter on Elecare Jr., she said that many countries like Japan and in Europe use this as a first line of treatment. I don't think she specified the names of the countries. She said the Elecare Jr. would be used in lieu of steroids. Anyway, she no longer sees this doctor. She was 17 at the time. She now sees an adult GI doctor. I need to ask her adult GI doctor what the alternative to Elecare Jr. is for adults. I wonder if she could still take the Elecare Jr.. It's very sweet. She preferred the non flavored one. To tell you the truth, she really didn't like it but the alternative was steroids and like I said it made her fevers go away when she was taking it.
 

my little penguin

Moderator
Staff member
Poppy socks
Thanks for your advice - but I didn't ask for it.
But as in many things- it's better to leave my child's diet to his doctors since they know his history . Randomly telling me or anyone to not give my/their child something that his doctors feel he needs out of fear is not a good idea. He had already been getting plenty of iron from other sources including chicken etc...plus supplemental nutrition and still had low values . Again when you don't know the history telling someone to pull something their doctor has advised them to do is not a good idea.

I am well aware of the potential down falls of ecoli etc...

I merely stated what had happened with my child and why diet is a vary individual thing to be discussed with the doctor handling the case.
 
Poppy socks
Thanks for your advice - but I didn't ask for it.
But as in many things- it's better to leave my child's diet to his doctors since they know his history . Randomly telling me or anyone to not give my/their child something that his doctors feel he needs out of fear is not a good idea. He had already been getting plenty of iron from other sources including chicken etc...plus supplemental nutrition and still had low values . Again when you don't know the history telling someone to pull something their doctor has advised them to do is not a good idea.

I am well aware of the potential down falls of ecoli etc...

I merely stated what had happened with my child and why diet is a vary individual thing to be discussed with the doctor handling the case.
Well, I wasn't really giving you advice on your child I was giving it to Nadine, this thread was not started by you, but I understand the confusion. No need to get defensive. I want to stress, we are all on the same team here.

In defense, nothing I said was harmful. You can avoid red meat/dairy products and still get plenty of iron as long as you are getting animal protein from other sources. Additionally, if a child's intestines are really inflamed it really doesn't matter how iron packed a particular food is as you won't be absorbing most of the nutrients from the food. I'd also like to point out doctors are not trained in nutrition, and are probably not aware of links between MAP/E Coli and Crohns. My GI when I was young told me to be a couch potato and eat whatever I wanted when I asked him how to gain weight. I was stupid and I listened to him and could never figure out why I felt like crap all the time.

Someone created a thread asking for advice and I gave it. Am I not allowed to give advice?

I do admit I probably should have gone into more detail in my first post, as someone could mistake my suggestion to be all meat instead of just red meat/dairy.
 
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Lady Organic

Moderator
Staff member
When my daughter's pediatric gastroenterologist put my daughter on Elecare Jr., she said that many countries like Japan and in Europe use this as a first line of treatment. I don't think she specified the names of the countries. She said the Elecare Jr. would be used in lieu of steroids. Anyway, she no longer sees this doctor. She was 17 at the time. She now sees an adult GI doctor. I need to ask her adult GI doctor what the alternative to Elecare Jr. is for adults. I wonder if she could still take the Elecare Jr.. It's very sweet. She preferred the non flavored one. To tell you the truth, she really didn't like it but the alternative was steroids and like I said it made her fevers go away when she was taking it.
at my adult hospital in canada the GIs dont use it. we must do our own research about this subject and propose it if we want to use it. The IBD nutritionnist is the most knowledgeable on the subject. They should carry booklets with all products info from different brand. For Elemental diet, in Canada, we only have access to Vivonex and Tolerex from Nestle and the taste is terribly awefull. I see Elecare is from Abott :
http://abbottnutrition.com/brands/products/Elecare
IN the UK, they have Elemental 028 for adults , which seems super good and easy to drink as opposed to Vivonex.
 
Welcome, sorry Im so late to the thread.
My little farm girl is 5 so a bit younger than yours.
I'm glad you got to go see her.
I pray she gets better soon.

As to the diet debate.
Its up to her. If she finds a trigger food...pull it.
Everything in moderation (I have yet to learn this lesson:ylol:)
I guess depending on where your beef ( grass fed vs store bought) and milk are coming from is what I would worry about more than pulling those items.
But I'm bias..... I'm dairy PROUD farmers wife.:wink:

She should always be encouraged to follow her docs advice than personal experiences of others.


Keep us updated.
 
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So Jessie is back at school at USC and I am back home in NJ. She was in the hospital at Cedars Sinai in LA for 6 days and was discharged on Monday the 13th (her 20th birthday!). She was treated by Dr. Eric Vasiliauskas and the IBD team and I can't say enough wonderful things about them. Jessie and I both feel very fortunate that Dr. V and his team will be taking care of her now. She was dehydrated and anemic and so they gave her IV fluids, IV Iron and also started her on IV prednisone. We decided on Remicade and azathioprine (still waiting for the genetic testing for the azathioprine) and she had her first Remicade infusion the day before she was discharged. She is on an oral prednisone taper and will see Dr. V again on Oct. 28th for a follow-up and her second Remicade infusion. She feels like a new person! She is eating, no more diarrhea, and says she has more energy than she has had in months.

Thank you all for all of your support!
Nadine
 
Hey my name is Sam I'm 18 so this might help I'm male though ha ok so I was told I had crohns when I was in second year in school would of been just 14 I was on my way to Spain when a week before I suffered a massive anal abscess the pain was unreal the pressure was intense I had to get major surgery luckily it has not came back in that anal area sinse but I have had 3 or 4 surgerys in total because of Anal abscess's ....4 years later and I relize I cannot drink beer ? Because of all the unknown ingredients to my knowledge I'm certain beer if anything stick to clear spirits or just avoid drink you'll suffer in the end trust me I just turned 18 in July haha I've recently went on a all gluten free diet as I was told that wheat can swell the bowel and make flare ups major sore this is working for me a lot to be honest :) I'm on tablets called asacolon I take two every morning they help in ways ... Ok so some tips that help me
1.taking baths in bath salts when having flares
2.always clean anal area with wipes instead of roll
3.drink lots of water
4.i play soccer so this gets my mind off crohns for 2hrs
5.Gluten free diet no junk no fast food
6.walks in fresh air staying in your house makes things worse you will dwell on it
7.rubbing tummy in 360 rotation can help abit
8.Do not force your stools to come out let it happen naturally I suffer from a pile from doing so
9.Do not smoke
10.Try really hard not to get stress weather it be in a job at school etc...

I hope this helps in any shape of form if you have any questions in here to help remember I've had this since my balls dropped so I've been trew it all

Sam :)
 
I am reaching out to you after having read your entries here. I realize your posts are from last Fall, and that much could have changed in six months. Our daughter has Crohns. She graduated from USC last May. We are so grateful she had a fairly normal college experience. We feel that it is due in great part to being a patient of Dr. Marla Dubinsky who was at Cedars at the time. Dr. Dubinsky is on the cutting edge and willing to try the latest options in treatment. Sarah's health has crashed since Dr.D. left Cedars and we are on the same hunt I was on when we flew to Mayo for her care in 2008. I am very pleased to hear that you are happy with Dr. V at Cedars, we will read about him. If you are still uneasy about your daughter's care, see Dr. Dubinsky when your daughter is home with you in NJ. She is the best of the best medically. You have the benefit that she is not too far from you now.
 
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