Hey all,
Thought I'd put a quick update on after my first follow up today. The consultant I saw, although he was surgical did at least try to answer my questions, not too happy with a couple of things he said but on thw whole am feeling better about my situation.
He's ruled out UC after my colonoscopy came back normal. (Although I told him about the procedure AND result, not vice vera!) So this is good news, he still suspects CD of the small intestine however and has referred me to a doctor. ( I found out I was put under him due to the pain I was in on my hospital admission, now that I haven't had a cripplng bout of pain in 2months he's putiing me under doctor care which I'm happy with)
He's also ordered a barium x-ray to view the small intestine so as silly as it may sound I'm praying that this shows something up! He also told me that he ordered this test whilst I was in hospital but the hospital gave me the wrong test! They gave me a 'water sol contrast meal' which I believe looks for complete obstruction of the small bowel and is not used for imaging?!
So now just have to wait for the date of the test and go from there.
The two things that bothered me were that when I asked about a capsule endoscopy he told me that this is no good as it is only used when patients are blleding! When I told him I was having some blood 2 months ago he said "but you're not now so we don't need to do it"! Does anybody know this to be true or was he having a little Pinochio episode?!
The other thing was when I told him about undigested food in my stool (which is happening now) he simply said "the body can't break down big parts of food, you're probably not chewing enough". I assured him that since this began I chew my food even more so, until it is pretty much mush, but he just argued it probably still wasn't enough! We batted to and fro and I could see he wasn't going to change his mind so left that one there until I get more info! Any thoughts anyone could offer would be appreciated!
Just one last thing, I wanna say a big thank you to everyone in this community again as without the people on here I would've gone into today's appointment virtually 'blind'! Its due to being on here these past couple of weeks that gave me the knowledge and confidence to go in there, speak to them on a level and stand up for myself! I really couldn't have done it without you, big thanks and love!!!
Craig
Thought I'd put a quick update on after my first follow up today. The consultant I saw, although he was surgical did at least try to answer my questions, not too happy with a couple of things he said but on thw whole am feeling better about my situation.
He's ruled out UC after my colonoscopy came back normal. (Although I told him about the procedure AND result, not vice vera!) So this is good news, he still suspects CD of the small intestine however and has referred me to a doctor. ( I found out I was put under him due to the pain I was in on my hospital admission, now that I haven't had a cripplng bout of pain in 2months he's putiing me under doctor care which I'm happy with)
He's also ordered a barium x-ray to view the small intestine so as silly as it may sound I'm praying that this shows something up! He also told me that he ordered this test whilst I was in hospital but the hospital gave me the wrong test! They gave me a 'water sol contrast meal' which I believe looks for complete obstruction of the small bowel and is not used for imaging?!
So now just have to wait for the date of the test and go from there.
The two things that bothered me were that when I asked about a capsule endoscopy he told me that this is no good as it is only used when patients are blleding! When I told him I was having some blood 2 months ago he said "but you're not now so we don't need to do it"! Does anybody know this to be true or was he having a little Pinochio episode?!
The other thing was when I told him about undigested food in my stool (which is happening now) he simply said "the body can't break down big parts of food, you're probably not chewing enough". I assured him that since this began I chew my food even more so, until it is pretty much mush, but he just argued it probably still wasn't enough! We batted to and fro and I could see he wasn't going to change his mind so left that one there until I get more info! Any thoughts anyone could offer would be appreciated!
Just one last thing, I wanna say a big thank you to everyone in this community again as without the people on here I would've gone into today's appointment virtually 'blind'! Its due to being on here these past couple of weeks that gave me the knowledge and confidence to go in there, speak to them on a level and stand up for myself! I really couldn't have done it without you, big thanks and love!!!
Craig
