Hi, my name is Hollis. I have had Crohn's for 26 years. I was first diagnosed with Crohn's when I was ten years old. I was diagnosed with Crohn's at Children's Hospital in New Orleans. I don't think there is a procedure or medication I have not been on. I'd say it's changed my life rather drastically. Being diagnosed at such an early age with Crohn's I realize that I have had Crohn's more than half my life now.
I guess my funniest Crohn's disease story was when they gave me medication in a hospital in Memphis that made me hallucinate and think they were going to harvest my organs. I was around 13 years old at the time. I actually successfully fled the hospital and ended up barricading myself in our hotel room which the cops had to break down with a battering ram.
I'd say worst procedure or surgery I had to go through was for a fistula connected to my bladder which required placement of a stint and stint removal. This over all was my worst surgery I've had.
Currently I'm on Entocort, Ciproflaxin and Humira. I've been pretty satisfied with my doctors right now and my treatment plan. Humira's a good drug but it seriously just wipes me out energy wise. However it does work really well so I've not had to many flare ups since I've been on it.
I think the only thing that is bothering me right now is dental care. I wear dentures because my teeth basically just got destroyed over the years from antibiotics and prednisone. So right now I'm trying to find resources for that. Currently trying to find a place that would work with me on Dental Implants since I am such a young age (36) I need to get them in the next few years or I wont be able to have function from bone loss.
I guess my funniest Crohn's disease story was when they gave me medication in a hospital in Memphis that made me hallucinate and think they were going to harvest my organs. I was around 13 years old at the time. I actually successfully fled the hospital and ended up barricading myself in our hotel room which the cops had to break down with a battering ram.
I'd say worst procedure or surgery I had to go through was for a fistula connected to my bladder which required placement of a stint and stint removal. This over all was my worst surgery I've had.
Currently I'm on Entocort, Ciproflaxin and Humira. I've been pretty satisfied with my doctors right now and my treatment plan. Humira's a good drug but it seriously just wipes me out energy wise. However it does work really well so I've not had to many flare ups since I've been on it.
I think the only thing that is bothering me right now is dental care. I wear dentures because my teeth basically just got destroyed over the years from antibiotics and prednisone. So right now I'm trying to find resources for that. Currently trying to find a place that would work with me on Dental Implants since I am such a young age (36) I need to get them in the next few years or I wont be able to have function from bone loss.
It's fab you are in a good place treatment wise, makes a huge amount of difference and hope you'll be able to sort your dental out soon. I'll think about that in the near future but one end messed about with in any year is my motto 