Hello...... newly diagnosed on July 30th, not even a full week has passed by.
Still processing all this. Reading a lot in a short period of time.
Not too sure how I am feeling about having a disease that has no cure, with remission or a reduction in symptoms as the only hope.
Not comfortable with taking meds every day for the rest of my life = Pentasa, I have thoughts like, Will it work? Will I need more meds, a cocktail of them? Go natural with diet alone, or construct a hybrid mish-mash of treatment regimens? A lot to take in and consider.
I am more introspective, and perhaps not in a good way. Reviewing every stomach issue I have had in the past few months, searching for the possible trigger to this disease. Every gurgle and twinge in my stomach has me on edge. Will I get worse, eventually lose feet of my intestines to inflammation?
I'm just processing all this and coming to terms with the reality....
Already I was the topic of conversation at a backyard BBQ when my girlfriend in hushed tones began discussing my unfortunate plight with my other friends that did not know of my diagnosis. I had a wave of conflicting emotions. I was pitted by some and I felt various shades of being sad, humiliated, then grateful for having sympathetic friends, but yet shameful as I felt that somehow I became the entertainment for the nights discussion, and I felt bad about myself. I am surprised about feeling these new combinations of emotions for the first time. Very complex stuff.
Since I am just diagnosed, I am asking advice from everyone who has had Crohn's for a while, and who would like to share.
Knowing what you do now, looking back, what advice can you give me?
Thanks
Still processing all this. Reading a lot in a short period of time.
Not too sure how I am feeling about having a disease that has no cure, with remission or a reduction in symptoms as the only hope.
Not comfortable with taking meds every day for the rest of my life = Pentasa, I have thoughts like, Will it work? Will I need more meds, a cocktail of them? Go natural with diet alone, or construct a hybrid mish-mash of treatment regimens? A lot to take in and consider.
I am more introspective, and perhaps not in a good way. Reviewing every stomach issue I have had in the past few months, searching for the possible trigger to this disease. Every gurgle and twinge in my stomach has me on edge. Will I get worse, eventually lose feet of my intestines to inflammation?
I'm just processing all this and coming to terms with the reality....
Already I was the topic of conversation at a backyard BBQ when my girlfriend in hushed tones began discussing my unfortunate plight with my other friends that did not know of my diagnosis. I had a wave of conflicting emotions. I was pitted by some and I felt various shades of being sad, humiliated, then grateful for having sympathetic friends, but yet shameful as I felt that somehow I became the entertainment for the nights discussion, and I felt bad about myself. I am surprised about feeling these new combinations of emotions for the first time. Very complex stuff.
Since I am just diagnosed, I am asking advice from everyone who has had Crohn's for a while, and who would like to share.
Knowing what you do now, looking back, what advice can you give me?
Thanks