Hello, I'm new here.
My 5 year old girl has been suffering on and off for years.
she was diagnosed primary lactose intolerant at around 1month old.
Has developed other minor intolerances.
She has had tummy pain for as long as I can remember,
She goes through periods of increased pain, nausea and messy, stinky poos.
Her latest episode lasted months and she was passing mainly mucas and blood.
She had also lost weight, was very tired and moody.
She's seeing gastro paeds. Had blood tests, all ok
Stool samples ok except her stool calprotectin was 200. (hospital said this was fine!!???)
The hospital has not done anything more, asked for a repeat stool specimen in 6 months time...
She seems to be in some form of remission atm. Putting on weight with good colouring and fairly normal stools.
My 2 year old has the same intolerances so I'm sure we'll be going down the same path soon enough! Our food bills are colossal! ;-)
I guess I'm just looking for some guidance and support. The hospital makes me feel like I have munchausens so I don't feel comfortable sharing concerns with them..
My 5 year old girl has been suffering on and off for years.
she was diagnosed primary lactose intolerant at around 1month old.
Has developed other minor intolerances.
She has had tummy pain for as long as I can remember,
She goes through periods of increased pain, nausea and messy, stinky poos.
Her latest episode lasted months and she was passing mainly mucas and blood.
She had also lost weight, was very tired and moody.
She's seeing gastro paeds. Had blood tests, all ok
Stool samples ok except her stool calprotectin was 200. (hospital said this was fine!!???)
The hospital has not done anything more, asked for a repeat stool specimen in 6 months time...
She seems to be in some form of remission atm. Putting on weight with good colouring and fairly normal stools.
My 2 year old has the same intolerances so I'm sure we'll be going down the same path soon enough! Our food bills are colossal! ;-)
I guess I'm just looking for some guidance and support. The hospital makes me feel like I have munchausens so I don't feel comfortable sharing concerns with them..