I have been admitted to the hospital 7 times sence April been in the ER 9. If you love your family and yourself please go to the doctor if you are in pian. I have hidden my pain for 5 years.I told myself it's food alergies,it's bad gas just keep going, keep working, the constant pain is not that bad suck it up. 5 years where I let a disease slowly rob me of my life all due to fear. In March I started throwing up at least every other day ,in one month I lost 30 lbs. Still horrified to go to the doctor not to mention working 60 hour weeks with no insurance. The morning of April 4th I woke up in so much pain I couldn't move just cry and throw up. My husband, who has watched all of this listened to me when I lied and said its not that bad,had had enough literally picked me up and drove me to the hospital. Within an hour they came back with Crhones and fistulas. Not to mention also a room full of doctors telling me I'm lucky to be alive . So most of you guys know the drill , we put in a port, I'm getting iron infusions and Remicade while taking a slew of medications pain killers etc. I had to quit my job which was my life I have worked 40-70 hour weeks sence I was 18 started working when I was 14 (I'm 32)this is the first time in my life where I'm not working. To say I feel lost and useless is the biggest understatement. We had to break our lease on the apartment, move in with my father in law and are in so much debt I have no idea if we will ever get out from under it. The only thing keeping me going is my husband and family . So I have made it through the first 3 infusions of remicade still in pain , I keep building a tolerance to the pain meds so half of my doctors think I'm now an opiate junkie. I'm reaching out on this forum becuse I'm starting to question why I'm putting myself and family through this if I'm still in constant pain, I'm tired and getting scared more and more each day of the pain I'm putting them and myself through . I'm horrified by the way I have ripped apart my husbands life ,his finances ,his social life . We wanted children SO bad now that will most likely not happen .All I'm needing is someone who is not a doctor or nurse ,someone who has this disease to tell me it will get better, that the constant level 5 pain will get lower . I know there is no cure,but some sort of hope of a remission is all I'm looking for. You are all strong beautiful people thank you for reading my story