Hi! I'm a newbie to this forum but not to Crohns. I was diagnosed 12 years ago but even as a kid had gastro problems. Okay, let me get to the point. My oldest daughter works in immunology... she convinced me 5 years ago to see a top gastro doc in Boston for a (lengthly) consult. He seemed to be "spot on" and sent me to an associate. For about a year, things were status quo, I was managing, continued to scope out all b/r in every store, restaurant I visited and was just getting by. Six months ago, doc adds 6MP to my regime of 8 Pentasa a day. After about 3 weeks, out of nowhere, I contracted bronchial pneumonia. I had this for 6 long, painful weeks as I barked like a dog, had zero energy and was a grump... (and it just sped up the D...)
So, here I am, 6 months later, still on 6MP and, lo and behold, bronchial pneumonia AGAIN...
Both times I've been given a Zpack, but it still takes time for me to regain my strength (and forget about my dignity...)
Today is the last day of my Zpack. Yesteray I went for a complete blood work up (oh, did I forget to mention that the 6MP has been a wee bit compromising to my liver?) The results of the blood work will be in tomorrow, but I have had it w/the 6MP. Doc says there is no correlation between the respiratory illnesses and the 6MP which I find very unusual since I worked with elementary school children for 30 years and never had this. Heck, I hadn't had a cold in about 5 years before going on this.
What are your thoughts? I didn't mean for this to be so long. My gut tells me to chuck the 6MP (we are going away for the first time in 30 years on our first cruise to Alaska... do I want to be sick, heck NO... I have already booked a zip line excursion
Any suggestions are most appreciated. My daughter is a Humira supporter and it saddens me to see how worred she is about me. I told her that I needed a break from the 6MP (and she agrees) and that we'd revisit Humira in a few months. The doc would like me on Humira as well but agrees that since we will be away for a while now isn't the best time to start it... (about the only thing we agree on...) While I love and trust my doc, I think that he isn't really listening.
Thanks!
So, here I am, 6 months later, still on 6MP and, lo and behold, bronchial pneumonia AGAIN...
Both times I've been given a Zpack, but it still takes time for me to regain my strength (and forget about my dignity...)
Today is the last day of my Zpack. Yesteray I went for a complete blood work up (oh, did I forget to mention that the 6MP has been a wee bit compromising to my liver?) The results of the blood work will be in tomorrow, but I have had it w/the 6MP. Doc says there is no correlation between the respiratory illnesses and the 6MP which I find very unusual since I worked with elementary school children for 30 years and never had this. Heck, I hadn't had a cold in about 5 years before going on this.
What are your thoughts? I didn't mean for this to be so long. My gut tells me to chuck the 6MP (we are going away for the first time in 30 years on our first cruise to Alaska... do I want to be sick, heck NO... I have already booked a zip line excursion
Any suggestions are most appreciated. My daughter is a Humira supporter and it saddens me to see how worred she is about me. I told her that I needed a break from the 6MP (and she agrees) and that we'd revisit Humira in a few months. The doc would like me on Humira as well but agrees that since we will be away for a while now isn't the best time to start it... (about the only thing we agree on...) While I love and trust my doc, I think that he isn't really listening.
Thanks!