A little background. . . daughter dx with Crohns at 15, had "stomachaches" for years, and was always "slim". The year she was dx she had been getting more pale, more frequent stomachaches, and finally had so much nausea/vomiting/stomachache that it couldn't be ignored. She ended up getting transfused, put on TPN and had abscesses in her belly from her intestines "leaking". At that point was put on prednisone till she could get established on Remicade. All was well for 7 mos, then she got a peri-rectal abscess. On CT there were actually 3 small abscesses, which they treated with IV antibiotics. She again did well for about 10 mos, and then developed another peri-rectal abscess. This one was treated with IV antibiotics as well as surgically drained. The surgeon said he saw "healing tracts" indicating that this was a fistula. He also mentioned the possiblity that the previous abscesses had not completely gone away, but had resurfaced as this one abscess.
SO, after all that. . . . GI wants to add 6mp to her Remicade to prevent further abscesses. Am I being overly optimistic, thinking that since the fistula/abscess was surgically drained and "cleaned out" that she will do well now? Are these drugs really too much for her? At the least, I'm going to ask the doc to wait till after graduation to start the meds. Too much disruption in her life the last 2 years, I want her to be able to go to grad night, and have a nice graduation before we have more potential issues.
Would love to hear thoughts on combining these drugs. Also leads on reliable places to research this further.
SO, after all that. . . . GI wants to add 6mp to her Remicade to prevent further abscesses. Am I being overly optimistic, thinking that since the fistula/abscess was surgically drained and "cleaned out" that she will do well now? Are these drugs really too much for her? At the least, I'm going to ask the doc to wait till after graduation to start the meds. Too much disruption in her life the last 2 years, I want her to be able to go to grad night, and have a nice graduation before we have more potential issues.
Would love to hear thoughts on combining these drugs. Also leads on reliable places to research this further.