Undiagnosed 7 year old, any advice or can you relate??
Hi all, where do I start.
so last march my child came down with a virus well actually strep throat that turned to scarlet fever ( not confirmed by swabs just by rash and symptoms) at the a&e department as my childs temperature was very high he was vomitting and dioreah and wouldn't hold liquids down scarlet looking rash and sore throat. He was given antibiotics and he did recover however a week later I noticed him rushing to the toilet more and more complaining of constant nausea and by that I mean from the moment he woke to the moment he slept he would cry with how sick he felt.
This was accompanied by random bouts of vomitting stomach cramps and pain on the left colon side. My child is under a allergist already as they have a dust mite allergy and so my first go to was is this food thats not agreeing so they tested the usual culprits foods and did some bloods and told me he wasn't allergic however if it carried on I should see a pediatric gastroenterologist so in july they made a refferal. Unfortunately for my poor little man it did and the dioreah and sickness is still there untill this day his bloods came back with only high eosphinil at the time and then began the hospital trips admitted in august and September for suspected ibd they checked his mouth and daid he has ulcers on 2 occasions- the bloods they did said could indicate IBD and to wait for refferal as he cpuld cope with calpol and anti sickness.
Randomly he would just feel sick and not be sick then randomly every couple of weeks actual vomit or have severe left hand pain eventually childs a and e did some bloods and said they suspect ibd ( uc) over chrones because of some symptoms and bloods and where the pain was. so still we was waiting for the refferal he would have 2 maybe 4 weeks okay then it began again I tried Low fodmap and gluten free no change so then i tried fairy free after 2 weeks he stopped complaining of cramps and sickness and stools was more formed to a mush. The refferal was this April where he was given a barium meal swallow which was normal, all stool samples for inflamation and parasites normal.
However despite me thinking dairy free helped 6 weeks later its bacl again I asked what can I do he was given anti sickness untill the endoscopy and colonoscopy is due but we are still waiting.. I feel so helpless that some days he isn't managing school people assume its anxiety even in 6 weeks summer holidays and having fun it really dosent strike me as anxiety and he is well informed of who to talk to and where ro go for worries and has a very straight forward happy life, good friends, high school grades, always had 100% attendence untill this started,no sleep disturbances and the weekends it still occurs.I decided to stick to eliminating dairy even though he isn't allergic it seems to aggravate him further.
We are waiting on an endoscopy and colonoscopy but my question is if the barium meal and stools are normal is he likely to even have IBD.? Had anyone else had similar with young children.
His bloods are high crp.
High eosphinil count
Low red blood count
Low hemoglobin
Low haemotacrit
Low globulin
High creatinine
Partial thromboblast high
Now these was on 2 occasions in a and e.
Is this why they are suggesting possible IBD At a and e, the gastroenterologist said his bloods aren't too abnormal just slightly out except crp
I just want to add that when he was 3 he had hpylori with ulcers and noduling which he was in alot of pain with and was treated for confirmed by endoscopy he was givent anti biotivs and anti acids and never any problems again untill he was 6 Years old.. untill this began the only difference back then was bloods and atools was positive for hpylori.All stools and bloods are negative for this the gastroenterologist ordered his investigations because of that history to the check for inflamation but I really don't know if everything else has been normal except his bloods and examinations of left side are indicating the bowel. Im so confued as of what can be going on he has eaten dairy all his life also.
The results are only very slightly high or low except crp which was 73.
Please any suggestions of what I can do to help him why we wait he isn't a emergency they said but my poor little happy boy isn't happy at all.
So a bad day can look like:
He starts with pain cramps, says he feels sick has very loose stool, he cries and sometimes although not often vomits he has lost some weight over the past year as they have told me that despite eating regularly still. He has a reoccurring sore throat that gp calls throat infections.
Also when an endoscopy is done will samples check for bacterias or germs that could cause symptoms aswell as just looking for IBD? I HAVE A BUNCH OF QUESTIONS THAT I WILL OF COURSE ASK BUT IM HOPING SOMEONE OUT THERE HAS BEEN THROUGH SIMILAR.
FAMILY HISTORY I HAVE BILE ACID MALABSORPTION AND TAKE A BINDER DAILY
Thanks for reading X one very concerned mu
Hi all, where do I start.
so last march my child came down with a virus well actually strep throat that turned to scarlet fever ( not confirmed by swabs just by rash and symptoms) at the a&e department as my childs temperature was very high he was vomitting and dioreah and wouldn't hold liquids down scarlet looking rash and sore throat. He was given antibiotics and he did recover however a week later I noticed him rushing to the toilet more and more complaining of constant nausea and by that I mean from the moment he woke to the moment he slept he would cry with how sick he felt.
This was accompanied by random bouts of vomitting stomach cramps and pain on the left colon side. My child is under a allergist already as they have a dust mite allergy and so my first go to was is this food thats not agreeing so they tested the usual culprits foods and did some bloods and told me he wasn't allergic however if it carried on I should see a pediatric gastroenterologist so in july they made a refferal. Unfortunately for my poor little man it did and the dioreah and sickness is still there untill this day his bloods came back with only high eosphinil at the time and then began the hospital trips admitted in august and September for suspected ibd they checked his mouth and daid he has ulcers on 2 occasions- the bloods they did said could indicate IBD and to wait for refferal as he cpuld cope with calpol and anti sickness.
Randomly he would just feel sick and not be sick then randomly every couple of weeks actual vomit or have severe left hand pain eventually childs a and e did some bloods and said they suspect ibd ( uc) over chrones because of some symptoms and bloods and where the pain was. so still we was waiting for the refferal he would have 2 maybe 4 weeks okay then it began again I tried Low fodmap and gluten free no change so then i tried fairy free after 2 weeks he stopped complaining of cramps and sickness and stools was more formed to a mush. The refferal was this April where he was given a barium meal swallow which was normal, all stool samples for inflamation and parasites normal.
However despite me thinking dairy free helped 6 weeks later its bacl again I asked what can I do he was given anti sickness untill the endoscopy and colonoscopy is due but we are still waiting.. I feel so helpless that some days he isn't managing school people assume its anxiety even in 6 weeks summer holidays and having fun it really dosent strike me as anxiety and he is well informed of who to talk to and where ro go for worries and has a very straight forward happy life, good friends, high school grades, always had 100% attendence untill this started,no sleep disturbances and the weekends it still occurs.I decided to stick to eliminating dairy even though he isn't allergic it seems to aggravate him further.
We are waiting on an endoscopy and colonoscopy but my question is if the barium meal and stools are normal is he likely to even have IBD.? Had anyone else had similar with young children.
His bloods are high crp.
High eosphinil count
Low red blood count
Low hemoglobin
Low haemotacrit
Low globulin
High creatinine
Partial thromboblast high
Now these was on 2 occasions in a and e.
Is this why they are suggesting possible IBD At a and e, the gastroenterologist said his bloods aren't too abnormal just slightly out except crp
I just want to add that when he was 3 he had hpylori with ulcers and noduling which he was in alot of pain with and was treated for confirmed by endoscopy he was givent anti biotivs and anti acids and never any problems again untill he was 6 Years old.. untill this began the only difference back then was bloods and atools was positive for hpylori.All stools and bloods are negative for this the gastroenterologist ordered his investigations because of that history to the check for inflamation but I really don't know if everything else has been normal except his bloods and examinations of left side are indicating the bowel. Im so confued as of what can be going on he has eaten dairy all his life also.
The results are only very slightly high or low except crp which was 73.
Please any suggestions of what I can do to help him why we wait he isn't a emergency they said but my poor little happy boy isn't happy at all.
So a bad day can look like:
He starts with pain cramps, says he feels sick has very loose stool, he cries and sometimes although not often vomits he has lost some weight over the past year as they have told me that despite eating regularly still. He has a reoccurring sore throat that gp calls throat infections.
Also when an endoscopy is done will samples check for bacterias or germs that could cause symptoms aswell as just looking for IBD? I HAVE A BUNCH OF QUESTIONS THAT I WILL OF COURSE ASK BUT IM HOPING SOMEONE OUT THERE HAS BEEN THROUGH SIMILAR.
FAMILY HISTORY I HAVE BILE ACID MALABSORPTION AND TAKE A BINDER DAILY
Thanks for reading X one very concerned mu