Hello to all of you
Firstly, sorry about my english, (it is not my mother language). So It's not the perfect one, specially in cientific or medical terms, so I'll try.
I've been reading your histories by a time, (you did'nt know but you were a good support during a difficult time for me) but now I've decide to talk about me aswell.
I am a woman in her thirties, I was diagnosed by extensive colonic crohn last year, after 15 years of total remission of another diagnosis (proctoulcerative colitis with only a pair of centrimetres afected.). I dindt had another colonoscopy during 15 years, doctors thought anual blood test was enough for me, because my "soft" ill.
But now, as I said, the illness changed a lot. After a few symptons meds ordered a colonoscopy wich showed the crohn and the new extension, I experimented a very bad flare just after the colonoscopy..I was very ill at the hospital and I almost lose my colon. ( i dont react properly to corticosteroids). One of you had this reaction after a colonoscopy? I am very worried of that because i guess I will have a lot of them.
At that moment my treatment was only mesalamine so I recibe ciclosporine (doctors said that this drug is the faster to try to avoid the cirugy, and It worked. I felt perfectly on my intestines during during the treatment with ciclosporine.
Moreover, I started azathioprine (wich needs some months to start to work) during the time I was decreasing ciclosporine. I took both and a big amount of corticosteroids, mesalamine too.. But when I finished the ciclosporine and corticosteroids, I had a new flare (3 month after the first one), so doctors decided that I was a candidate to Remicade.
After the first two infussions I reacted well and my levels become totally normal, and my simptoms desappeared (I starded a new cyclo of corticosteroids aswell). But I became to feel bad again on after the theird or fourtht infussion ( 5mg/ 8 weeks). So now I am trying with intensification ( 5mg/ 4 weeks)
Right now we are trying with that intensification but i dind'nt know if it will works because I dind'nt experiment big changes ( a bit better but not a remission yet after a par of intesificated infussions)
To sum up, a very difficult year, switching from one drug to another, and full of fears and doubts, and a incertain future yet.
P. D my symptons are basically pain on my belly , like waves of pain during the mornings (when I wake up) and blood. During my worst flare a year ago I had diarrhea aswell, but it is not tpical on me even when a I have a medium inflamation. Someone with colonic crohn with these symptons.?
Happy to greet you.
Firstly, sorry about my english, (it is not my mother language). So It's not the perfect one, specially in cientific or medical terms, so I'll try.
I've been reading your histories by a time, (you did'nt know but you were a good support during a difficult time for me) but now I've decide to talk about me aswell.
I am a woman in her thirties, I was diagnosed by extensive colonic crohn last year, after 15 years of total remission of another diagnosis (proctoulcerative colitis with only a pair of centrimetres afected.). I dindt had another colonoscopy during 15 years, doctors thought anual blood test was enough for me, because my "soft" ill.
But now, as I said, the illness changed a lot. After a few symptons meds ordered a colonoscopy wich showed the crohn and the new extension, I experimented a very bad flare just after the colonoscopy..I was very ill at the hospital and I almost lose my colon. ( i dont react properly to corticosteroids). One of you had this reaction after a colonoscopy? I am very worried of that because i guess I will have a lot of them.
At that moment my treatment was only mesalamine so I recibe ciclosporine (doctors said that this drug is the faster to try to avoid the cirugy, and It worked. I felt perfectly on my intestines during during the treatment with ciclosporine.
Moreover, I started azathioprine (wich needs some months to start to work) during the time I was decreasing ciclosporine. I took both and a big amount of corticosteroids, mesalamine too.. But when I finished the ciclosporine and corticosteroids, I had a new flare (3 month after the first one), so doctors decided that I was a candidate to Remicade.
After the first two infussions I reacted well and my levels become totally normal, and my simptoms desappeared (I starded a new cyclo of corticosteroids aswell). But I became to feel bad again on after the theird or fourtht infussion ( 5mg/ 8 weeks). So now I am trying with intensification ( 5mg/ 4 weeks)
Right now we are trying with that intensification but i dind'nt know if it will works because I dind'nt experiment big changes ( a bit better but not a remission yet after a par of intesificated infussions)
To sum up, a very difficult year, switching from one drug to another, and full of fears and doubts, and a incertain future yet.
P. D my symptons are basically pain on my belly , like waves of pain during the mornings (when I wake up) and blood. During my worst flare a year ago I had diarrhea aswell, but it is not tpical on me even when a I have a medium inflamation. Someone with colonic crohn with these symptons.?
Happy to greet you.
