Can anyone please advise me?
I had a temporary ( double barrel ) ileostomy formed 6 months ago after 20 cm of ileum and the caecum were removed and my sigmoid was repaired, where the Diseased ileum had stuck to it.
3 days after the operation I got really sick due to a partial blockage of the small bowel, which I was later told was caused by adhesions. I was drip fed and in hospital for 2 weeks. It got better without more surgery and I have been ok since, but stick to a low fibre diet and take a lot of loperamide for high output.
It took me a long time to get over the op mentally as well as physically and I have had problems with my joints since then, but, glad to say the last 5 weeks I have had loads more energy, and better mood.
Now I have been offered a date for my tAke down surgery, in 2 weeks time.
I had a sigmoidoscopy last week, the repair is healed but the scope couldn't get very far as the surgeon said the "distal sigmoid" is tethered. So I think that might mean its stuck because of more adhesions in that area too.
I am very worried about this operation, because I was so sick with the blockage last time and I am really worried that I now have bad adhesions which will make the surgery more difficult and risky and also means I get more adhesions!
My surgeon didn't mention adhesion before the first surgery so I was unaware of that risk. I have not been able to see him to properly discuss the risks with this second surgery. I have read quite a lot on line about adhesions which has not reassured me !! I feel like the surgeon will think I am making a fuss, and so I am nervous about asking him the questions I have.
I have loads of questions ! For eg, would it be better or worse adhesions wise to wait another 6 to 12 months for the takedown op ? Is there anything that I can ask be done to reduce the risk of more adhesions forming ?
I also have hypotrophic (? I think that's the word, it's pink and swollen looking ) midline scar which I think also shows that I am maybe prone to developing extra scar tissue and deep adhesions.
I never expected an ileostomy or complications such as adhesions so it was a big shock I am only just getting over. I just can't decide whether to go ahead with this second take down operation now or wait. I don't want to risk the adhesions getting worse meanwhile ( I read they solidify over time ) so that next year I find a reversal isn't even possible.
Has anyone had a similar experience or knows about these risks and what can be done to help reduce them please
Thanks for any help !
Tryagain
I had a temporary ( double barrel ) ileostomy formed 6 months ago after 20 cm of ileum and the caecum were removed and my sigmoid was repaired, where the Diseased ileum had stuck to it.
3 days after the operation I got really sick due to a partial blockage of the small bowel, which I was later told was caused by adhesions. I was drip fed and in hospital for 2 weeks. It got better without more surgery and I have been ok since, but stick to a low fibre diet and take a lot of loperamide for high output.
It took me a long time to get over the op mentally as well as physically and I have had problems with my joints since then, but, glad to say the last 5 weeks I have had loads more energy, and better mood.
Now I have been offered a date for my tAke down surgery, in 2 weeks time.
I had a sigmoidoscopy last week, the repair is healed but the scope couldn't get very far as the surgeon said the "distal sigmoid" is tethered. So I think that might mean its stuck because of more adhesions in that area too.
I am very worried about this operation, because I was so sick with the blockage last time and I am really worried that I now have bad adhesions which will make the surgery more difficult and risky and also means I get more adhesions!
My surgeon didn't mention adhesion before the first surgery so I was unaware of that risk. I have not been able to see him to properly discuss the risks with this second surgery. I have read quite a lot on line about adhesions which has not reassured me !! I feel like the surgeon will think I am making a fuss, and so I am nervous about asking him the questions I have.
I have loads of questions ! For eg, would it be better or worse adhesions wise to wait another 6 to 12 months for the takedown op ? Is there anything that I can ask be done to reduce the risk of more adhesions forming ?
I also have hypotrophic (? I think that's the word, it's pink and swollen looking ) midline scar which I think also shows that I am maybe prone to developing extra scar tissue and deep adhesions.
I never expected an ileostomy or complications such as adhesions so it was a big shock I am only just getting over. I just can't decide whether to go ahead with this second take down operation now or wait. I don't want to risk the adhesions getting worse meanwhile ( I read they solidify over time ) so that next year I find a reversal isn't even possible.
Has anyone had a similar experience or knows about these risks and what can be done to help reduce them please
Thanks for any help !
Tryagain