Hey everyone!
I'm currently in the "waiting for official diagnosis" group although in September of last year I was given a diagnosis of "indeterminate colitis" due to the results on a colonoscopy. I just has another colonoscopy on 1/9/15 at which time my GI told me the patch of inflammation in my colon was no longer there and everything looked "normal" - he did take quite a few "random" biopsies, so I'm currently waiting to hear back regarding the results. I was not given an upper endoscopy this previous visit. I'm scheduled for some CT scans tomorrow to look at the small bowels.
My first question is: if my colon looked fine (since the "patch" of inflammation was gone), how can I be having more severe symptoms now than the initial presentation? My symptoms are: severe diarrhea (up to 5-10 times per day and to the point where I seem to be passing only bile), food passing without being fully digested, lower left and right abdominal pain, vomiting (I will feel a rippling pain in my abdomen following by, basically, projectile vomiting - I literally have a split second to find something to vomit in or it'll go all over the place), as well as severe joint pain (mostly on the left side of my body - knee is the worst as well as left hand/fingers) and fatigue (I sleep and go to work (somehow) and have absolutely no energy for anything else).
After my colonoscopy, my doctor said to increase my Bentyl to 60 MG/day (I was on 30) to help with the cramping/vomiting. I'm also on Entocort (9mg/day). I thought the increase in medication would help but my symptoms have not subsided in the slightest. I'm hoping it's because I've only been on the increased dose for 3 days and not because it isn't working. How long should I wait before calling the doctor's office and asking if I should increase my Bentyl and/or be put on something different?
I couldn't get a follow-up appointment with my GI any sooner than March 3rd, although the nurse did state if anything showed up on my biopsies, they would squeeze me in for an appointment asap.
I'm quite possibly the most impatient person in the world, so this whole "waiting game" is extremely distressing.
I'm currently in the "waiting for official diagnosis" group although in September of last year I was given a diagnosis of "indeterminate colitis" due to the results on a colonoscopy. I just has another colonoscopy on 1/9/15 at which time my GI told me the patch of inflammation in my colon was no longer there and everything looked "normal" - he did take quite a few "random" biopsies, so I'm currently waiting to hear back regarding the results. I was not given an upper endoscopy this previous visit. I'm scheduled for some CT scans tomorrow to look at the small bowels.
My first question is: if my colon looked fine (since the "patch" of inflammation was gone), how can I be having more severe symptoms now than the initial presentation? My symptoms are: severe diarrhea (up to 5-10 times per day and to the point where I seem to be passing only bile), food passing without being fully digested, lower left and right abdominal pain, vomiting (I will feel a rippling pain in my abdomen following by, basically, projectile vomiting - I literally have a split second to find something to vomit in or it'll go all over the place), as well as severe joint pain (mostly on the left side of my body - knee is the worst as well as left hand/fingers) and fatigue (I sleep and go to work (somehow) and have absolutely no energy for anything else).
After my colonoscopy, my doctor said to increase my Bentyl to 60 MG/day (I was on 30) to help with the cramping/vomiting. I'm also on Entocort (9mg/day). I thought the increase in medication would help but my symptoms have not subsided in the slightest. I'm hoping it's because I've only been on the increased dose for 3 days and not because it isn't working. How long should I wait before calling the doctor's office and asking if I should increase my Bentyl and/or be put on something different?
I couldn't get a follow-up appointment with my GI any sooner than March 3rd, although the nurse did state if anything showed up on my biopsies, they would squeeze me in for an appointment asap.
I'm quite possibly the most impatient person in the world, so this whole "waiting game" is extremely distressing.
