Hi,
I am needing some advice. So far the Pentasa has only made a 50% difference in the D (3-4 good days a week) so the GI is adding Lotronex. He is also running more blood tests. I'm frustrated as the nausea is still here so I'm on Phenergan 1-2 times a day - sometimes the nausea starts within an hour of waking and if not then - definitely within an hour of eating. The GI has not been able to determine what is causing the Acid Bile Malabsorbtion - this I think may be the cause of the nausea? Pain usually starts after I have eaten but not always. I asked him his thoughts on the SCD, etc diets which he really didn't have any comment. My Crohn's is in the Upper GI.
Seems like we are just covering up the symptoms rather than overcoming them. The GI has not talked about trying any of the other meds (which he knows I'm afraid of) but I have no quality of life. I'm very lucky in that my family is near and comes to visit.
Does anyone have any advice?
I am needing some advice. So far the Pentasa has only made a 50% difference in the D (3-4 good days a week) so the GI is adding Lotronex. He is also running more blood tests. I'm frustrated as the nausea is still here so I'm on Phenergan 1-2 times a day - sometimes the nausea starts within an hour of waking and if not then - definitely within an hour of eating. The GI has not been able to determine what is causing the Acid Bile Malabsorbtion - this I think may be the cause of the nausea? Pain usually starts after I have eaten but not always. I asked him his thoughts on the SCD, etc diets which he really didn't have any comment. My Crohn's is in the Upper GI.
Seems like we are just covering up the symptoms rather than overcoming them. The GI has not talked about trying any of the other meds (which he knows I'm afraid of) but I have no quality of life. I'm very lucky in that my family is near and comes to visit.
Does anyone have any advice?