- Location
- Illinois (not Chicago)
I just sent this message to my doctor, but I'm copying it here to see if anyone else has experienced this:
I was able to start Humira on Wednesday, May 10 with the help of the Humira Complete nurse. Saturday, May 13, I vomited my lunch around 5 p.m. but felt better afterward, so I suspected something I ate was bad.
Sunday, May 14, my gut was hurting a lot and I could hardly eat anything. I just had bread and butter for dinner. That evening, I felt a lot of inflammation in my ileum and it almost felt like a semi-solid mass when I pushed on it from the outside with my hand. I was up during the night with a lot of loud noise and gas and pain. I feared I might have a partial obstruction, but since I could feel and hear gas moving, I trusted it would eventually work itself out. Eventually, I got to sleep.
I was OK on Monday, May 15, until I ate food around lunchtime. I spent the bulk of the afternoon feeling a lot of pain and gas, and I eventually vomited around 7 p.m.
Tuesday, May 16, I tried to put myself on a mostly liquid diet of nutrition drinks and Ramen. That was OK, but at night I got hungry and had some snacks. Big mistake. I went to sleep, but a couple hours later was awakened by the pain and gas again. At some point during the night, I vomited.
Wednesday and Thursday, I did better at sticking to my diet of nutrition drinks and Ramen, but it's hard because I actually have somewhat of an appetite, which is an improvement from before. But now I feel like almost everything is unsafe.
Is this an effect of Humira? What should I do? My ileum still feels sore. I feel like it's partially obstructed, and I'm scared. I'm also hungry.
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Anyone else have a story like this? What did you do?
I was able to start Humira on Wednesday, May 10 with the help of the Humira Complete nurse. Saturday, May 13, I vomited my lunch around 5 p.m. but felt better afterward, so I suspected something I ate was bad.
Sunday, May 14, my gut was hurting a lot and I could hardly eat anything. I just had bread and butter for dinner. That evening, I felt a lot of inflammation in my ileum and it almost felt like a semi-solid mass when I pushed on it from the outside with my hand. I was up during the night with a lot of loud noise and gas and pain. I feared I might have a partial obstruction, but since I could feel and hear gas moving, I trusted it would eventually work itself out. Eventually, I got to sleep.
I was OK on Monday, May 15, until I ate food around lunchtime. I spent the bulk of the afternoon feeling a lot of pain and gas, and I eventually vomited around 7 p.m.
Tuesday, May 16, I tried to put myself on a mostly liquid diet of nutrition drinks and Ramen. That was OK, but at night I got hungry and had some snacks. Big mistake. I went to sleep, but a couple hours later was awakened by the pain and gas again. At some point during the night, I vomited.
Wednesday and Thursday, I did better at sticking to my diet of nutrition drinks and Ramen, but it's hard because I actually have somewhat of an appetite, which is an improvement from before. But now I feel like almost everything is unsafe.
Is this an effect of Humira? What should I do? My ileum still feels sore. I feel like it's partially obstructed, and I'm scared. I'm also hungry.
---
Anyone else have a story like this? What did you do?