S
Skinsfan1229
Guest
Well last week I had an appointment with the university hospital GI, he runs all the clinical trials in the region, and also does some clinical trials with celiac disease.
Well long story short, he always scares me, because he's a professor at a top school, and I overhear him talking about that I have severe and complicated case.
Even though I have an illiostomy, I have gotten another rectal abcess, which I had lanced in outpatient surgery last thursday, and had a abdominal abcess back in july. He thiinks that since they heal over then bust again that either might be connected to my bowels. I'm already taking so many meds, and have had numerous surgeries. Now I'm on methotrexate and about to go back on remicade, with loading dosese at 2,4,6 weeks then every 8 weeks, and after a few infusion I will be bumped up to 10mg per kilo, instead of the normal 5mg per kilo. Ive literally tried everything, this is the last straw, I've had so many surgeries. When is it going to get better?
I also saw my psychiatrist for the first time in 15 months. Put me on celexa, and xanax which I was already taking, I have to take a xanax bar..2mg which actually is making me more anxious since taking it like that, I can tell when the med stops working because I'm twice as anxious as before taking it. So he called me in klonopin today which I will pick up later, tends to be a slower release, or atleast I dont "come down hard" from it like xanax.
The university hospital GI scares me, he sees the more severe and hard cases, and for him to say that i'm severe and complicated must mean something. I mean I honestly knew I was more severe then most people but, for a professor to say it....thats a different story.
Well guys I'm off to get my methotrexate injection, this is m 8th one. Havent been on an immuno-modulator in 3 years because 6mp suppressed my bone marrow, but the metho seems to be working, my labs are looking better every week my local GI says.
Hope everyone is doing ok...I've been busy lately and not participating like I would like on the forum. I like to be here everyday, know how everyone is getting along, and if they need anything. I know we all need support, but sometimes we need a little more then that...
Well long story short, he always scares me, because he's a professor at a top school, and I overhear him talking about that I have severe and complicated case.
Even though I have an illiostomy, I have gotten another rectal abcess, which I had lanced in outpatient surgery last thursday, and had a abdominal abcess back in july. He thiinks that since they heal over then bust again that either might be connected to my bowels. I'm already taking so many meds, and have had numerous surgeries. Now I'm on methotrexate and about to go back on remicade, with loading dosese at 2,4,6 weeks then every 8 weeks, and after a few infusion I will be bumped up to 10mg per kilo, instead of the normal 5mg per kilo. Ive literally tried everything, this is the last straw, I've had so many surgeries. When is it going to get better?
I also saw my psychiatrist for the first time in 15 months. Put me on celexa, and xanax which I was already taking, I have to take a xanax bar..2mg which actually is making me more anxious since taking it like that, I can tell when the med stops working because I'm twice as anxious as before taking it. So he called me in klonopin today which I will pick up later, tends to be a slower release, or atleast I dont "come down hard" from it like xanax.
The university hospital GI scares me, he sees the more severe and hard cases, and for him to say that i'm severe and complicated must mean something. I mean I honestly knew I was more severe then most people but, for a professor to say it....thats a different story.
Well guys I'm off to get my methotrexate injection, this is m 8th one. Havent been on an immuno-modulator in 3 years because 6mp suppressed my bone marrow, but the metho seems to be working, my labs are looking better every week my local GI says.
Hope everyone is doing ok...I've been busy lately and not participating like I would like on the forum. I like to be here everyday, know how everyone is getting along, and if they need anything. I know we all need support, but sometimes we need a little more then that...