crohnsinct
Well-known member
Hi all! Thought I would start with the adult forum as the sed GI's don't typically prescribe rectal suppositories.
My 19 year olds had Crohn's for 7 years. About 3 years ago she started passing a lot of mucus, having extreme urgency (some accidents), and her frequency was way up. Initially the GI said "IBS". Then she started off and on bleeding. Fecal cal in the thousands. Scope showed inflammation. Increased Remicade and it helps most of the inflammation but she still has tenesmus with about 20 bathroom trips a day. Sometimes diarrhea, sometimes fine, sometimes nothing. No blood.
New GI wants her to try Budesonide and Anucort suppositories. I just picked up the script and directions are for twice daily. I figure at night right before bed would be our best shot at her keeping the med in but am at a loss for when else she could do it? How do you keep the med in if you are going to the bathroom 12-20 times a day. Is there a minimal amount of time that is needed to keep the med in and after that you should be fine?
P.S. they are still thinking that this might be an IBS overlay to her Crohn's. If the suppositories work I am thinking that means all these symptoms were her rebellious rectum. Does anyone know if hydrocortisone suppositories help IBS?
Also, Budesonide was denied by insurance. GI is out of the office until the new year. Do you know if the suppositories will work without a systemic med also? I guess she isn't totally without systemic given she is on Remicade but wondering what the shot is for it to work without Budesonide. How fast do you guys typically get relief. She is pretty miserable right now.
My 19 year olds had Crohn's for 7 years. About 3 years ago she started passing a lot of mucus, having extreme urgency (some accidents), and her frequency was way up. Initially the GI said "IBS". Then she started off and on bleeding. Fecal cal in the thousands. Scope showed inflammation. Increased Remicade and it helps most of the inflammation but she still has tenesmus with about 20 bathroom trips a day. Sometimes diarrhea, sometimes fine, sometimes nothing. No blood.
New GI wants her to try Budesonide and Anucort suppositories. I just picked up the script and directions are for twice daily. I figure at night right before bed would be our best shot at her keeping the med in but am at a loss for when else she could do it? How do you keep the med in if you are going to the bathroom 12-20 times a day. Is there a minimal amount of time that is needed to keep the med in and after that you should be fine?
P.S. they are still thinking that this might be an IBS overlay to her Crohn's. If the suppositories work I am thinking that means all these symptoms were her rebellious rectum. Does anyone know if hydrocortisone suppositories help IBS?
Also, Budesonide was denied by insurance. GI is out of the office until the new year. Do you know if the suppositories will work without a systemic med also? I guess she isn't totally without systemic given she is on Remicade but wondering what the shot is for it to work without Budesonide. How fast do you guys typically get relief. She is pretty miserable right now.