- Location
- Williamson, WV
Just curious if anyone else out there is having success with the anti-map treatment. I switched from taking pred Imuran and humira to anti-map therapy plus ultraviolet blood irradiation and so far its been great.
Let me know how it goes. I arranged a call with him for tomorrow in the late afternoon. I'm in Phoenix and thinking about making the trip out there (not too bad), but I am not covered out of state.*Bumping this thread
I was just able to make an appt with Dr. Chamberlin today. His out of pocket visit is max $146 (might be lower), and he spends 1.5 hours with you. Also after this initial appointment he will manage you through phone/email if you're out of state (New Mexico). My appointment is in July, I can't wait to see him!
The woman who made my appt said he would only charge $146 max for the office visit. I don't know how much the MAP blood test would be or the prescriptions. I'm going to try and get my GI on board (good luck, right) so that my insurance will cover them.Let me know how it goes. I arranged a call with him for tomorrow in the late afternoon. I'm in Phoenix and thinking about making the trip out there (not too bad), but I am not covered out of state.
Where did find the max out of pocket cost value? The out of pocket cost would be the main thing holding me back, but if its only ~$150 that might not be an issue. Right now I am just looking to have the MAP test performed and I can't find a doctor out here that even knows about it. I'm sure the test is pricey, but hopefully within a range I can afford.
Thanks,
Dan
I've wondered the same thing, I know there's someone on here that does humira and anti-map, and I also know that they're now allowing people to remain on remicade and particulate in the rhb104 trial so there's a lot more of a shift in thought that the two treatments can work in synergy.I'm not sure if I should start anymore threads on this topic, but I was wondering if you can be on Remicade and start anti-MAP therapy. My doctor has my scheduled for my first infusion in a couple weeks and I contemplating canceling it until I get MAP results back. The problem with that is my quality of life is pretty crummy right now and Remicade is usually ineffective if you start and stop again.
Anyone have thoughts or experience with this?
No, I haven't had one. I'm waiting until Dr. Hermon-Taylor's blood test is ready to go, it's supposed to be more accurate I think. Also there is a "dying-off period" with the antibiotics/map therapy where if you do have the bacteria, I hear that you go through a week or two of feeling completely awful (bacteria is dying off). So that's an indicator that you do have the bacteria, without having to have the blood test.stelarjess - hey.
did you get a map blood test in the USA?
We dont have that yet in Australia…
.I'll post this here as well as it may be of interest to some:
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Hi Tabs,
There is now finally a facility in the US where you can get testing. You do not even need your GI or anything like that. I'm sorry I cannot post a direct link yet due to forum rules.
Sorry this is the only way I can post a direct link, haha. Anyways, the test I believe is $450
The benefit however is that they will actually perform three tests for you. They will try and culture (grow) MAP directly from your blood sample. They will try to detect MAP by PCR (so look for MAP DNA in your blood) and they will test for antibodies in your blood against MAP.
I will be sending my sample in shortly - I was unfortunately delayed in sending mine as I recently had to go for quite a few days on IV antibiotics due to a strep infection in my throat. Just recovering from that ordeal now.
I have Crohn's-Coltis by the way so I am interested in finding out the results.
This may be a good (and easy) option for you. I will also post this on the other MAP thread. Perhaps the best $450 bucks you'll ever spend.
Also you just go get your blood drawn anywhere and simply express post it to them.... it's just that easy now. Crazy how things change. In my case I am in Canada and have to fill out a "non-infectious" form for US Customs but that is also very easy.
Hi there, could you please let me know how to get a hold of Dr. Chamberlin?Let me know how it goes. I arranged a call with him for tomorrow in the late afternoon. I'm in Phoenix and thinking about making the trip out there (not too bad), but I am not covered out of state.
Where did find the max out of pocket cost value? The out of pocket cost would be the main thing holding me back, but if its only ~$150 that might not be an issue. Right now I am just looking to have the MAP test performed and I can't find a doctor out here that even knows about it. I'm sure the test is pricey, but hopefully within a range I can afford.
Thanks,
Dan