This is very true! And I haven't had any this year yet. I had a colonoscopy last March, and I had one of those pill cam's a couple months after and I switched Drs. So nothing recently my blood work last month and for December showed I'm anemic, my hemoglobin was 10 in December. And 11.3 I think last month but the rest was fine. I see my dr. The end of this month to get tests providing I can make it that long lol I'm over due for tests.You know your body better than anyone else. What tests have you had and how long ago?
Hey tots!I am sorry your not feeling well.
Rarely are my lab test positive for CD.
Here is what I have learned- trust yourself- if something doesnt feel right, chances they are not. You are your best advocate. Its ok to fight for what you think you need!
I have had strictures before and think I am dealing with one now, what are your symptoms?
Or what leads you to believe you have one??
Lauren
Sounds like you need to go to the ER or see your doctor ASAP. Let us know how you are.Hey tots!
My labs don't show it either, the only thing that changes on them is my hemo.
My crp has only been high once ever so my Drs. Quit looking at it lol
Hopefully my dr. Will run tests when I see him on the 28th. And be able to help somewhat.
Strictures are my thing too! And I hate them. Last one I had landed me in the hospital. Fun. Where my anastomosis is (rlq) tends to get inflamed easily as well as my colon. I really wish I could throw it away haha. Anyway the past month or 2 I've felt it being swollen and can feel food go through it and it feels like razors hot ones. And when I lay down it feels like a ball is there and I can feel liquid build up and then slowly trickle through, last time it did that I had a stricture forming from repeated inflammation. I'm also feeling that in the middle under my scar but I'm thinking that could be adhesions maybe? Who knows.
The other side (lower left colon area by my hip) well. A blockage formed Sunday night, and I thought it was partial (it wasn't), but yesterday I could barely move from the horrendous stabbing pain there, today was the same and I tried everything I could think of to move it and finally when I gave up, and was putting clothes away I felt it move and ran to the bathroom and it came out, a black ball of whatever followed by my normal watery stuff, and it was a blood bath when I flushed it. If it hadn't gone anywhere my butt would of been in the Er tomorrow. That crap effing hurts. Also, my nausea has been absolutely insane since Sunday. And I've thrown up a few times from it. And since Jan. I've lost a good bit of weight and I can hardly eat as it hurts to much and I'm too nauseous even with my nausea meds.
My innerds are inflamed and hurt and are bleeding. Yippie :thumbdown:oo:
I need a drink! Lmao
Lauren, can you get a second opinion?Wow- it sounds just like how I am feeling.
Usually my inflammation shows with an upper gi or ct scan.
I was on disability for three months and felt somewhat better- then back to work and I am back sliding!! I started with CD in the terminal ileum and a few yrs ago it moved to the left side- so CD with left sided colitis. I was bleeding at that point. Great fun!
I am on Remicade right now and in a little bit of a war with my Dr right now. I want remission I am not so sure he's really that into it! "We" were going to add Imuron after a "few" months and somehow his few months is a yr!! That made me so freaking mad! He said
this is my last hope- Imuron helps hold off the antibodies to Remicade- soo we aw not using it WHY?
This has to be one of the most under treated, un patient educated diseases ever- and I used to work for GI drs.
that being said have a beer or a glass of wine.... its better than barium or contrast!!!
Lauren
Hey Ron!Sounds like you need to go to the ER or see your doctor ASAP. Let us know how you are.
When I had the blockage, I would feel up quickly and had trouble finishing meals. I eventually had to have a resection. Right now, I get random pains and the doctor isn't sure but said it could be scar tissue or adhesions. I built up a reaction to Remicade. I was on Stelara but they are getting ready to put me on Humira soon.Hey Ron!
I seriously would of if the blockage hadn't moved.
What did your blockage feel like?
I got in with my for the 28th of this month. That's the earliest I could get in sadly. Definitely going to get many many tests. This is nuts, I know it's there, I'm not crazy lol I just need it to show up on them for once. My colon likes to be camera shy. -__- lol
I'm currently waiting for my oxycodone to kick in, and laying down with a heating pad and my pillow pet around my abdomen.. Mind you I'm still in a lot of pain but not as much as earlier.
How are you feeling? Still having mild pains?
Why can't you still visit the ER even though the blockage has moved?Hey Ron!
I seriously would of if the blockage hadn't moved.
What did your blockage feel like?
I got in with my for the 28th of this month. That's the earliest I could get in sadly. Definitely going to get many many tests. This is nuts, I know it's there, I'm not crazy lol I just need it to show up on them for once. My colon likes to be camera shy. -__- lol
I'm currently waiting for my oxycodone to kick in, and laying down with a heating pad and my pillow pet around my abdomen.. Mind you I'm still in a lot of pain but not as much as earlier.
How are you feeling? Still having mild pains?
I get full easily too but that's normal for me.When I had the blockage, I would feel up quickly and had trouble finishing meals. I eventually had to have a resection. Right now, I get random pains and the doctor isn't sure but said it could be scar tissue or adhesions. I built up a reaction to Remicade. I was on Stelara but they are getting ready to put me on Humira soon.
I could but the last time I went, they said and I quote "you no longer have an active gi here, we can't do anything for you. Your best bet is to call your dr and see if you can see him this week."Why can't you still visit the ER even though the blockage has moved?
Lordy that sounds awful Lauren :/ sorry you had to go through all that!Ron- I moved to Texas in 2000, transferred my records to one of the "good docs" in town, he took me off all meds to "see what happens" to make sure I really had CD. I had already been Dx'd and treated years earlier. So off to another Dr here in Texas- he gave me a prescription for Valium- that I tore up and handed back to him. I said I am not a drug seeker keep it. So 1o untreated years later- it had spread 8 day hosp stay and I have been out of remission for 5 yrs. So to answer your question- I have been down that road and it was bumpy !!
nini_mini- Have you ever had another medication at the same time as your Remicade?
Snap- tornado warning on its way!! gonna be a loooong night!
Lauren
I hope you get it straightened out with the Remicade level.Sounds like it! I guess as long as the sirens didnt go off your good. Lol
I hear you on that! Remi hasnt been doing anything for me since last year, the only thing it does to me is make me sick, with bad Tonsillitis or a nasty cold that takes forever to go away. Lol my rheumy and i tried to change it twice for those reason'sand my gi said theres to much in your system, if we knock it down to 5mgs it'll bring the levels down and work better......... riiiight. Lol has done a damn thing at the lower dose, ive been narrowly avoiding the er for the past 3 or 4 months solely from pain killers. Whicj in itself isnt good but hey, I'll take it. Lol
We are here for you.I need help :sign0085:
Does your GI know it isn't working? Talk with him/her about being put on some medicine in place of it.Soooo, I've done something dumb. Maybe, I think it's fine. My gi might kill me Monday though. I've decided to cancel my remicade for tomorrow. As I don't have the time this month to do it, along with the fact that it's not working. I don't see the point in having something infused into me that isn't working and only makes me sick after I get it.
At least this way if it is doing something I should notice a difference in how I feel right?