anyone miss me (and my mysterious IBD)?
After a long and necessary hiatus from the forum I've felt like coming back to get some advice. Here's an update:
Tomorrow will mark my 52nd-month anniversary of this mystery illness.
I have had to eliminate red meat (I eat a bit once or twice a month) and most veggies and a ton of fruits.
I get flares every 3-5 months, where the only relief is Prednisone.. But being on it 3 times in the last 7 months has given me osteoporosis and made me gain 25 lbs. I also have to be very careful about Pred since I now have Hypertension.
My flares involve about 10 bowel movements a day (usually within 20 mins of eating or drinking), with deep red blood. If its not bloody BMs, its vomitting after eating. But all of the time though I'm in a vehicle or not near a garbage can so just swallow the vomit back down :X.
I am waiting to have a new procedure done, a CT Enterography. My specialist says "there is definitely something very wrong with you".
So I am curious, if eating meals veryyy slowly doesn't work to reduce the chance of vomiting, what works for you?? Have any of you had a CT Enterography?? Does a liquid diet during flares really work??
After a long and necessary hiatus from the forum I've felt like coming back to get some advice. Here's an update:
Tomorrow will mark my 52nd-month anniversary of this mystery illness.
I have had to eliminate red meat (I eat a bit once or twice a month) and most veggies and a ton of fruits.
I get flares every 3-5 months, where the only relief is Prednisone.. But being on it 3 times in the last 7 months has given me osteoporosis and made me gain 25 lbs. I also have to be very careful about Pred since I now have Hypertension.
My flares involve about 10 bowel movements a day (usually within 20 mins of eating or drinking), with deep red blood. If its not bloody BMs, its vomitting after eating. But all of the time though I'm in a vehicle or not near a garbage can so just swallow the vomit back down :X.
I am waiting to have a new procedure done, a CT Enterography. My specialist says "there is definitely something very wrong with you".
So I am curious, if eating meals veryyy slowly doesn't work to reduce the chance of vomiting, what works for you?? Have any of you had a CT Enterography?? Does a liquid diet during flares really work??