I was on budesonide for quite a while and talked my Dr into letting me ween off as I was having side effects as if on prednisone (moon face, always hungry, couldnt lose weight, moody) But now that I have been off for 3-4 months, My joint pain is coming back. I have a call in to GI to probably get back on. I guess steroid symptoms arent painful, so I may have to deal with those.Hi,
I am on Budesonide and have been for 5 months, but my Doctor is hinting that he is going to take me off it soon. The side effects for me were great. I don't get any Arthritis pain at all. My Pscoriasis all but disapeared and I am eating well. I still get some Diahhorea every day but usually only two poos a day. One thing that looks a bit worrying, but give no pain is swollen feet and ankles, which comes and goes.
I am due for an annual Colonoscopy soon and the Doc will decide what to do next, but he has already given me a list of future drugs and they include :- Azathioprine, and if that doesn't work move onto TNF, what ever that is.
My understanding is that the Budesonide is less harmfull to the organs than the Prednisol.
I was on it and I love it! I was on it for 8 weeks and felt so good. I asked my IBD nurse if I could continue on it and she said no. I am now covered in a rash, exhausted, joint pain and feel like rubbish. I don't know why they wouldn't let me continue as it was so obviously working.