I was diagnosed with Crohn's disease at approximently age 26. I was throwing up everything I ate, if I felt like eating. If I didn't throw it up it came out the other end. Id either have night sweats to the point where I'd have to change my clothes and sheets or be so cold a burning hot bath wouldn't warm me up. At the very end my legs were covered in what looked like small bruises everywhere! I weight 90lbs by the time they figured out what was wrong with me. It was the scariest thing that's ever happened to me! I remember lying in bed with my mom at me side and saying, "please don't let me die".
After a colonoscopy indicated what I was dealing with was crohns; They gave me prednisone and asocal and I began to heal I guess.... I hated taking pills everyday so after I felt better I stopped taking them. I think I probably noticed more frequent bowels so I went back to the doctor and he gave me more asocal and prednisone. I again took some, felt better, and quite taking it. This cycle continued until I got pregnant and during my pregnancy I took the medication because I did not want to get sick.As soon as I had my son I stopped taking the medication. I went back to the doctor because of bowels and he recommended we do another colonoscopy. My second colonoscopy years later. Things weren't great inside I was not healing well. So he suggested Remicade IV. I have been taking this drug for eight months everything seemed fine no problems. Until lately, I've hade extreme joint pain! I can't function, I wake up and my knee hurts, I go to sleep then my toe hurts. The pain comes and goes in diffrent joints. It's crippling and makes me so angry and depressed. I have to see a new provider because of insurance and he of coarse is recommending we do another colonoscopy to see how I have healed. I think he will see I have but that I still have issues inside. He didn't care to much about the fact that I can't walk or move and said there is nothing he can do so for 7 more weeks I will just have to deal with the joint paint most likely caused by remicade. Has anyone had a similar story? What happens next? I hate taking medications for this disease! I feels such frustration and I am beggining to have a real lack of trust in docters who spend little time with me
After a colonoscopy indicated what I was dealing with was crohns; They gave me prednisone and asocal and I began to heal I guess.... I hated taking pills everyday so after I felt better I stopped taking them. I think I probably noticed more frequent bowels so I went back to the doctor and he gave me more asocal and prednisone. I again took some, felt better, and quite taking it. This cycle continued until I got pregnant and during my pregnancy I took the medication because I did not want to get sick.As soon as I had my son I stopped taking the medication. I went back to the doctor because of bowels and he recommended we do another colonoscopy. My second colonoscopy years later. Things weren't great inside I was not healing well. So he suggested Remicade IV. I have been taking this drug for eight months everything seemed fine no problems. Until lately, I've hade extreme joint pain! I can't function, I wake up and my knee hurts, I go to sleep then my toe hurts. The pain comes and goes in diffrent joints. It's crippling and makes me so angry and depressed. I have to see a new provider because of insurance and he of coarse is recommending we do another colonoscopy to see how I have healed. I think he will see I have but that I still have issues inside. He didn't care to much about the fact that I can't walk or move and said there is nothing he can do so for 7 more weeks I will just have to deal with the joint paint most likely caused by remicade. Has anyone had a similar story? What happens next? I hate taking medications for this disease! I feels such frustration and I am beggining to have a real lack of trust in docters who spend little time with me
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