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Awaiting diagnosis! Newbie!

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Butterfly28

Hi everyone!
I'm new to this forum. I'm currently awaiting diagnosis via colonoscopy and biopsy. My celiac test has come back negative & my bloods were all ok.
I have suffered with flare ups my whole life.
My current symptoms are - diarrhoea for around 3 months in a bad day im going up to ten times! Mucas, now and then a bit of blood but not a lot and not often. Stomach cramps, fatigue, achy joints, nausea, also have skin tags and what I'm thinking is a fistula :/ my doctor is concerned that it is colitis. Does this sound like typical colitis or ibs?
Thanks in advance!
 
M

mom5272

Same symptoms I had 24 years ago and was misdiagnosed twice. I have Crohn's..Please make sure you get the colonoscopy so they can see exactly what the issue is. The colonoscopy was the only thing that diagnosed me. I was told I had colitis then IBS. Finally had the colonoscopy which confirmed Crohn's.

Best of luck to you.
 
J

Julia S

I would suggest getting an MRI or CT scan as well if your colonoscopy comes back negative. My Crohns doesn´t affect my colon or terminal ileum so my colonoscopy came back negative. Pill cam and MRI were the tests that finally helped diagnose me. Oh, and a fecal calprotectine test! That's super too! IBS patients never have raised fecal CP.
 
ronroush7

ronroush7

Julia S said:
I would suggest getting an MRI or CT scan as well if your colonoscopy comes back negative. My Crohns doesn´t affect my colon or terminal ileum so my colonoscopy came back negative. Pill cam and MRI were the tests that finally helped diagnose me. Oh, and a fecal calprotectine test! That's super too! IBS patients never have raised fecal CP.
Click to expand...
Agree.
 
B

Butterfly28

Thankyou so much for your replies! It's nice to know I'm not going crazy lol I've got an appoitment to see the colonic surgeon in November I'm guessing this is just an initial appointment.
The flare up seems to be settling a bit now, still have body aches and nausea and my hair seems to have got really thin! :( So nice to find a forum for support xxx hope your all well!!
 
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