Hi guys - well I am back from 2 weeks in Bulgaria and everything went fine !!
I did pick up a 24 hour D+V bug which wiped me out but other than that i was fine.
The weird thing was that in the 2 weeks i only had 2 days of the chronic right side stricture pain that i have been getting 24/7 at home.
I spoke to my dietician on return and it seems that by eating a really limited diet due to fear of food poisoning or the like i have identified foods which make me ill.
I was basiclly on a very very low residue diet - i.e no residue at all.
Experiencing first hand how well i can be by avoiding foods has given me the motivation to utilise diet a lot more.
I am having a nasal gastric tube fitted next week to try and get remission by having elemental via a tube for 2-3 weeks and then to devise a diet that has modulan (think it's called that) cartons for breakfast and lunch and then for dinner have fish or chicken.
Veg, fruit and red meat are all out as that seem to be the culprits of pain.
The dietician said that oral elemental has low compliance rates due to the taste ans texture but tube feeding it gives amazing results.
I am hoping to get off the pred whilst on it and then re-assess if i need infliximab afterwards.
Feeling very positive as i am am actualy making informed choices rather than being told what to do.
My dietician has always been great and really informed and thorough wheras the consultant seems to live on another planet.
Seeing the consultant tomorrow so fingers crossed he does not try and over-rule her.
Hope everyone else is doing as well as can be.
Clare
x
I did pick up a 24 hour D+V bug which wiped me out but other than that i was fine.
The weird thing was that in the 2 weeks i only had 2 days of the chronic right side stricture pain that i have been getting 24/7 at home.
I spoke to my dietician on return and it seems that by eating a really limited diet due to fear of food poisoning or the like i have identified foods which make me ill.
I was basiclly on a very very low residue diet - i.e no residue at all.
Experiencing first hand how well i can be by avoiding foods has given me the motivation to utilise diet a lot more.
I am having a nasal gastric tube fitted next week to try and get remission by having elemental via a tube for 2-3 weeks and then to devise a diet that has modulan (think it's called that) cartons for breakfast and lunch and then for dinner have fish or chicken.
Veg, fruit and red meat are all out as that seem to be the culprits of pain.
The dietician said that oral elemental has low compliance rates due to the taste ans texture but tube feeding it gives amazing results.
I am hoping to get off the pred whilst on it and then re-assess if i need infliximab afterwards.
Feeling very positive as i am am actualy making informed choices rather than being told what to do.
My dietician has always been great and really informed and thorough wheras the consultant seems to live on another planet.
Seeing the consultant tomorrow so fingers crossed he does not try and over-rule her.
Hope everyone else is doing as well as can be.
Clare
x