So my son's has been feeling bad since the end of April. It started with a few days here and there of the overall bad feeling and some abdo pain and then WHAM his heel started to hurt for no reason. And I don't mean it just hurt a little, it hurts so much that he can't lie on his back in bed with his foot resting against the mattress and he can't bear any weight on it. Then the bad feeling (kind of like he has the flu but he doesn't have the flu) wouldn't go away. He has missed nearly 3 weeks of school. Of course this has all happened just after he had his GI and Rheumatology where we reported that everything was great. :voodoo:
To complicate matters, at the time of our the last appointment, Rheumatology decided to try and wean him off Sulfasalazine so we reduced the dosage by 1/4 for about 2 weeks. Once the heel pain set in I upped the Sulfasalazine back to the original dosage. However, the heel pain has not gotten better and the overall bad feeling his still there. So we saw Rheumatology today and as I expected they have put him back on the dreaded prednisone. And this Rheumatologist must have a go big or go home attitude because they put him on 40 mg. Not sure what the taper will look like, they will advise on that when they see how he responds. Not ideal but I hope it makes the foot better and gets rid of the overall bad feeling.
Oddly, through all of this we had a fecal calprotectin done and it came back NORMAL. WTF!!!!! I HATE this disease. :ymad:
To complicate matters, at the time of our the last appointment, Rheumatology decided to try and wean him off Sulfasalazine so we reduced the dosage by 1/4 for about 2 weeks. Once the heel pain set in I upped the Sulfasalazine back to the original dosage. However, the heel pain has not gotten better and the overall bad feeling his still there. So we saw Rheumatology today and as I expected they have put him back on the dreaded prednisone. And this Rheumatologist must have a go big or go home attitude because they put him on 40 mg. Not sure what the taper will look like, they will advise on that when they see how he responds. Not ideal but I hope it makes the foot better and gets rid of the overall bad feeling.
Oddly, through all of this we had a fecal calprotectin done and it came back NORMAL. WTF!!!!! I HATE this disease. :ymad: