Holding It Together
After moving to IL and seeing two new sets of eyes and having two sets of scopes that were negative, Jae's GI took her off of her 6MP all together when she was having low white counts from it, then pretty much wrote her off. We ended up eventually seeing a GI motility specialist ("specialty-specialist") due to her hypermobile EDS diagnosis a couple years ago. In the meantime she developed fissures on and off and still has her other issues of mostly diarrhea with occasional hard stools, GERD that flared consistently after the 6MP stopped, pain/ worsening of symptoms when she eats - mostly intestinal spasms, and has lost 20 lbs again. Her new GI has decided to bring her back to repeat her scopes now that she isn't on the 6MP (since 10/2017?). I am hoping it will lay to rest the question of whether or not she has Crohn's. He says he will do the scopes himself "with a fine tooth comb" to check every nook and cranny. All this was discussed in December, and tomorrow is finally the day it will happen.