I am new to computers..new to forums..and new to IBD..I am looking at a letter from Professor Bjarnason of Kings College fame..Ulcerative pan colitis diagnosed April 2016 is listed with my medical conditions,a varied and chronic sub text to my life..but the newcomer has done what the others[at least as serious] did not..the first rustlings of what some may call 'fear'..having managed what is now formally known as 'Sudden Unexpected Death Syndrome'..I KID YOU NOT..since birth I am at a loss on how to engage with the IBD unit..the above Professor does refer to me in the letter as 'a kind of down and out' and though not appropriate language I am grateful for his honesty..first impressions,how I am perceived by those whom are tasked to provide my care has been a long running saga..to the point where I am forced to conclude that perception is the basis of prejudice..I am very concerned with my diagnosis of course and having made a point of replying to the consultation letter I am a bit overwhelmed with the amount of support that the IBD unit is lobbing at me..but they don't seem to be hearing my concerns for the medication I am taking..2400mg mesalazine..5mg clipper?..but their coating is stopping them being absorbed..I am passing them almost intact..but can I make this clear to my doctor..nurse..dietician..my first post ever..have I made a complete fool of myself..have I been to open..or as it says used 'improper grammar'..bare with me..you may be my last hope..LOL..thanks for being there..alex
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Bare with me
- Thread starter Al X
- Start date
- Location
- East Midlands
Hi, welcome to the forum. There are different brands of mesalazine, so if you are certain that these particular ones are not being absorbed, could you try asking for a different one? When I was using suppositories, I found that my body could absorb one type but not another and the same can be true of pills/capsules that are in theory identical. Maybe also you could try taking your pills with or without food, whatever is the reverse of what you're currently doing - worth a try. Are you certain you're passing the whole pill and not just a capsule coating, by the way? GI doctors can be very difficult to deal with and quite arrogant in my experience - I don't know what the answer to that is, other than reading up on your condition and being able to ask intelligent questions (not that you always get an intelligent answer, I'm afraid).
I am struggling with the technology. .bare with me. .do you mean the mesalazine or the clipper beclom? steroids ting?
- Location
- East Midlands
Yes, suppositories only really help if the disease is confined to the rectum area (which mine was at the time, no longer unfortunately), so I guess the medics were correct in telling you they wouldn't help, as you have pan-colitis, ie more widespread disease.