I understand how you feel, I had possible crohns, then didnt, now I do again. I have been on steroids for over a month now and apparently they can still see the swelling on the xrays. Who knows what the heck they are going to have me do next. At this point I am about to say "No more tests, you saw the crohns twice now on scans lets treat it already!" kus this limbo stuff is insane, and the pain is outrageous.
On the CT scan a month ago they said I had extreme swelling of the illeum and terminal illeum, free floating fluid, inflammation of the stomach cavity, and inflammation of the fatty tissues. you would think they would have done something then right? who knows what they saw on the SBFT scan, I hope it is less than what they saw on the CT.