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Best IBD Centre in US--Your Recommendation for Young Adults

Hi,
My young adult son needs a diagnosis. He is also a professional beginning his career. We are thinking of trying a week-long stay at the best US IBD centre for young adults to see if he can get a diagnosis and treatment started. He has had IBD-like symptoms for about three years, with the past year being the worst.

Top and bottom scopes gave 'mild colitis-perhaps'. Lab work shows nothing that can be treated. No small intestine imaging done or in the works. "Try Low-FODMAPS diet" has resulted in him being stuck in the elimination phase of the diet due to the severity of his symptoms. A three-month trial of Mezavant has not relieved symptoms of weight loss, bloody diarrhea, nausea, bloating, brain-fog, intermittent night sweats and intermittent joint pain.

(My scopes and lab tests did not show the severity of my disease either until I lost 60 pounds and developed blind spots in my eyes from anemia. I do not want him to end up like that.)

Please send us your recommendations. Thanks so much.
 
There are many fine IBD centers in the US. Off the top of my head I would suggest:

Mayo Clinic (Minnesota)
Mt Sinai/ NYU (New York City)
Univ. of California, San Diego
Univ. of California, San Francisco
Cedars-Sinai Medical Center, Los Angeles
Univ. of Chicago
Univ. of Miami
Dartmouth-Hitchcock Medical Center, New Hampshire


And you don't even need to leave Canada if you don't want to. Mt. Sinai/Toronto is also excellent.
 
UCSD is absolutely amazing. University of San Diego. Doctor Sandborn and his team are wonderful. I was so happy to find them when I lived there, and so sad when I left, because I’ve not been able to find a good doc where I am now in Florida.
 
UCSD. so happy I live in town and have the best right here. My doctor, Brigid Boland, trained under Sandborn...they all did there at UCSD's IBD center. You can see him once but thereafter you deal with a NP, so didn't want that and prefer a female doctor anyway.
 

afidz

Super Moderator
People from all over the world go to Cleveland Clinic. Their IBD center is one of the best. I didn’t go to the IBD Clinic, but I had to have surgery there this past fall. It was by far the best hospital I’ve ever been to. If I ever needed to go there again, I wouldn’t hesitate in a second. The hospital runs like a well oiled machine, the staff is incredible kind and caring, the doctors are knowledgeable. The place is perfect
 
Having been enrolled in a clinical trial at Mayo (and traveling there six times for surgeries, visits, etc.), I can say I was very happy with my care there. My doctor recently moved from Mayo to Cleveland Clinic, which I also know has a phenomenal IBD team. Best of luck!
 
While it's natural to want to go to the best treatment facility, one thing my Crohn's diagnosis has taught me is there is a lot of trial and error and no two people have identical responses to treatment. Also, one week isn't likely going to be enough time to get a definite diagnosis, let alone know if a treatment is going to be effective or not.

Humira has helped me immensely, but it took about six months before I really started feeling like myself again. Before that, it was about a ten year process of ups and downs. I went to several hospitals (including Johns Hopkins) before I got a definite diagnosis.
 
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