I'm really struggling with crohns disease.
Flared a year ago, started prednisolone, colonoscopy a couple of months later showed disease spreading. Started azathioprine and budesonide, three months later felt terrible. Switched aza to 6mp. Three months later, really ill again, stopped 6mp. Did another course of budesonide, didn't help at all, crp climbed to 90.
Started infliximab (remi) in Feb, Crp dropped straight away but still felt rough. Since third infusion have gone really downhill, pulse racing, low blood pressure, dizzy, nauseous, struggling to eat, struggling to stand up to be honest. Got emergency appointment with GI tomorrow. IBD nurse thinks I can't tolerate immunosuppresant as soon as it builds up in system.
So question is, has anyone else struggled like this with meds and if so, what did you do? Is there a biologic that is easier to tolerate?
Flared a year ago, started prednisolone, colonoscopy a couple of months later showed disease spreading. Started azathioprine and budesonide, three months later felt terrible. Switched aza to 6mp. Three months later, really ill again, stopped 6mp. Did another course of budesonide, didn't help at all, crp climbed to 90.
Started infliximab (remi) in Feb, Crp dropped straight away but still felt rough. Since third infusion have gone really downhill, pulse racing, low blood pressure, dizzy, nauseous, struggling to eat, struggling to stand up to be honest. Got emergency appointment with GI tomorrow. IBD nurse thinks I can't tolerate immunosuppresant as soon as it builds up in system.
So question is, has anyone else struggled like this with meds and if so, what did you do? Is there a biologic that is easier to tolerate?