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Bioprosthetic fistula plug
- Thread starter Chrons Ma
- Start date
)Diagnosed at 15. Ileo-caecal resection at 16. Initially CD large bowel only, but had several bowel obstructions in small bowel (go figure ?) 1st fistulas approx 5 years ago. (Flair hasnt lasted 5 years per se, but fistulas have been a persistent issue over that time) Total colectomy last year, rectal stump left. Has seen 4 gastros now for total review. Sons a complicated case as many are. Thanks for your concern. Hopefully someone has had experience with these plugs as thats the next procedure on our list !
This approach has a very low success rate. My experience was bad. Plug created terrible infection and abscess that needed to be drained. I had to be hospitalized on very strong IV antibiotics that killed all my good gut bacteria and got C diff. That was 9 years ego and for the first year C diff came back twice. Check this video on new treatment research at Mayo clinic: http://medprofvideos.mayoclinic.org...lication-for-stem-cells-crohn-s-complications
P.S Is this a treatment you have trialled yourself exit4? I will certainly ask about the availability in NZ for Crohns but my understanding treatment here is still limited. What treatment have you found to be successful for your fistulating CD ? Everyone seems to have such varying successes
I was not able to travel to Mayo for this trial - active flair on prednizone at the time. Humira worked great for 4 years, then my body adapted to it. Nothing else worked to heal/close my fistula. I am living with a seton now for 5 years. I am waiting for start of a new trial with direct injection of donor stem cells at Miami UH -check this site: https://umiamihealth.org/clinical-t...ords=&term=&page=1&pagesize=20&orderby=weight
I also had Ileostomy for 2 years to heal absess/fistula. Fistula closed. I had a reversal and fistula came back -my rectal inflammation came back.
Next suggested step is replacement of current standard seatons with a 'comfort' seaton for sons fistulas (22 Oct 19). Some live permanently with them we are told. Surgeon wants to trial this first before further discussion re plug. Son is now leaning heavily toward rectal stump removal and being done with it. Life is pretty miserable still with an increase in biologics for control now also knocking him round. Will keep forum updated