Hi All,
I am new around here and it is great to meet you all. If you want to read my story (aka NOVEL)- please go here to the "your story" section and find the thread " Hi! Newly Diagnosed IBD, on top of Bipolar I,Lupus and Menier's Disease..". That's me.
I have been in so much pain and am still in a lot of pain. I called my GI doc again this morning because I desperate for relief. We were waiting on biopsy results to see how to proceed. We got them this morning.
She took 9 biopsies from inside, and the results confirm I have both Crohn's Disease AND Ulcerative Colitis??!! How is this freaking possible??
My doctor wants me to have more blood work done to try to rule out UC. She feels pretty certain I just have Crohn's disease, but the biopsy results say otherwise so she needs more confirming evidence before she can really treat me better. During the colonoscopy she felt that I had UC until she got to my ileum and then felt I really had Crohn's Disease. She still feels this way.
Ugh!!
Any thoughts? Any experience with this situation?? Any ideas for pain relief?
I am currently on Asacol (800mg x 3 a day) and Prednisone (40 mg a day). Bentyl no longer works. I take the max amount of Tylenol (Acetaminophen) I am allowed in a day too.
Thanks and best health to you all!
-Jackie
I am new around here and it is great to meet you all. If you want to read my story (aka NOVEL)- please go here to the "your story" section and find the thread " Hi! Newly Diagnosed IBD, on top of Bipolar I,Lupus and Menier's Disease..". That's me.
I have been in so much pain and am still in a lot of pain. I called my GI doc again this morning because I desperate for relief. We were waiting on biopsy results to see how to proceed. We got them this morning.
She took 9 biopsies from inside, and the results confirm I have both Crohn's Disease AND Ulcerative Colitis??!! How is this freaking possible??
My doctor wants me to have more blood work done to try to rule out UC. She feels pretty certain I just have Crohn's disease, but the biopsy results say otherwise so she needs more confirming evidence before she can really treat me better. During the colonoscopy she felt that I had UC until she got to my ileum and then felt I really had Crohn's Disease. She still feels this way.
Ugh!!
Any thoughts? Any experience with this situation?? Any ideas for pain relief?
I am currently on Asacol (800mg x 3 a day) and Prednisone (40 mg a day). Bentyl no longer works. I take the max amount of Tylenol (Acetaminophen) I am allowed in a day too.
Thanks and best health to you all!
-Jackie