Brand new to this forum. My daughter (15) was just diagnosed with Crohn's a week ago after an 11 day hospital stay. She had experienced stomachaches off and on for several years, but becoming much worse lately. The week before she went into the hospital she had horrible pain every time she ate. Going in, they thought she had a ruptured appendix, but more studies led to the dx of Crohn's. She also got a blood transfusion for severe anemia and was put on TPN for a week.
We haven't yet had our 1st appt with the GI, and I'm trying to use this time to gather info so I can be as informed as possible going into the appointment. The GI we saw in the hospital wants to start her on Remicaid or Humera right away. I'm feeling like those are really "heavy" drugs, and a long term committment. I'd like to start slow, and see what she NEEDS, instead of just diving in deep. Along with that, friends have suggested trying Aloe Vera supplements since there are very few serious side effects.
Any tips or pointers for me? Any questions you wish you had asked at the beginning of your journey? Most of the time I feel completely clueless as to this whole thing!
We haven't yet had our 1st appt with the GI, and I'm trying to use this time to gather info so I can be as informed as possible going into the appointment. The GI we saw in the hospital wants to start her on Remicaid or Humera right away. I'm feeling like those are really "heavy" drugs, and a long term committment. I'd like to start slow, and see what she NEEDS, instead of just diving in deep. Along with that, friends have suggested trying Aloe Vera supplements since there are very few serious side effects.
Any tips or pointers for me? Any questions you wish you had asked at the beginning of your journey? Most of the time I feel completely clueless as to this whole thing!