It's been a while since I did an update, so...
I've been on Humira since christmas and on the whole it's doing pretty well. BM's have dropped from 3 a day to 1 or 3 in two days kind of number. However, I'm having to still be very careful of my diet. The wrong thing can still send me into a 3day grumble.
I know when my injection is due because at the weekend before it's due my jaw starts to ache and goes crack! sometimes.
I'm also still kind of tired. I did get quite a boost in energy levels when it first kicked in. Dont think I could have got any lower mind, so any increase would feel pretty great. I wonder if I'm getting used to that level, or what, as I find I feel really tired all the time. This is not a new feeling as I used to complain of it years before I had Crohn's symptoms. Whether I'm back there, or this is different, I dont rightly know. Funny thing is I can climb Ben Nevis (1344metres), feel pretty good the next day. But sit in front of the computer and I find myself unable to think why it was I wanted to come in here, what words to write, and generally fall asleep. Which is not good if I'm to get back into writing software at the end of the summer! Just dont know what the heck I'm going to do with that one. It does make me wonder if methotrexate has done me lasting damage.
I've been thinking that this spring and summer I'm going to do something ridiculous and climb all the Munros. It's kind of morphing into seeing if I can get anywhere near gaining the summer Mountain Leader Award - UK mountain guide certification thang. Just so that if I am unable to program, or can't face going back into an office I have something I might be able to do for a job. Of course, having said that to someone outside of family I'm probably jinxing my chances! And then there's turning something you like doing into a job making it into a chore. Hmmm. Jury is out on that. Might be all I can do tho bar stacking shelves in a supermarket.
Ummm, my next GI appointment was put back a couple of months by the hospital. I was looking forward to discussing with him some of the above, but it'll have to wait until September!
Just looking forward to getting back into the mountains after Easter, hopefully for 3 weeks as I've found a safe and secure fridge to stash my drugs whilst I wander about the Highlands!
I've been on Humira since christmas and on the whole it's doing pretty well. BM's have dropped from 3 a day to 1 or 3 in two days kind of number. However, I'm having to still be very careful of my diet. The wrong thing can still send me into a 3day grumble.
I know when my injection is due because at the weekend before it's due my jaw starts to ache and goes crack! sometimes.
I'm also still kind of tired. I did get quite a boost in energy levels when it first kicked in. Dont think I could have got any lower mind, so any increase would feel pretty great. I wonder if I'm getting used to that level, or what, as I find I feel really tired all the time. This is not a new feeling as I used to complain of it years before I had Crohn's symptoms. Whether I'm back there, or this is different, I dont rightly know. Funny thing is I can climb Ben Nevis (1344metres), feel pretty good the next day. But sit in front of the computer and I find myself unable to think why it was I wanted to come in here, what words to write, and generally fall asleep. Which is not good if I'm to get back into writing software at the end of the summer! Just dont know what the heck I'm going to do with that one. It does make me wonder if methotrexate has done me lasting damage.
I've been thinking that this spring and summer I'm going to do something ridiculous and climb all the Munros. It's kind of morphing into seeing if I can get anywhere near gaining the summer Mountain Leader Award - UK mountain guide certification thang. Just so that if I am unable to program, or can't face going back into an office I have something I might be able to do for a job. Of course, having said that to someone outside of family I'm probably jinxing my chances! And then there's turning something you like doing into a job making it into a chore. Hmmm. Jury is out on that. Might be all I can do tho bar stacking shelves in a supermarket.
Ummm, my next GI appointment was put back a couple of months by the hospital. I was looking forward to discussing with him some of the above, but it'll have to wait until September!
Just looking forward to getting back into the mountains after Easter, hopefully for 3 weeks as I've found a safe and secure fridge to stash my drugs whilst I wander about the Highlands!