Chronic suffering of Crohn's

[Simbason]

Hello everybody!

My name is Lisa and I have been suffering from Crohn's for 20 years now. I was born with Hirschprung's disease so I have had digestive problems, pain and SEVERE "D" all my life. I just had my 7th surgery on my bowels on the 7th of January. I am still so much in pain (especially after I eat) and the "D" is never ending. I am very depressed and my quality of life sucks. I have a 3 year old boy and struggle everyday to take care of him. Thank God I have a supportive husband that helps enormously. I am at the end of my rope. I thought maybe joining this site would help me lift my spirits a bit in knowing how others are coping with their situation. Any comments?

 

[Franceshop]

hello , im in the undiagnosed club and only joined here when i was told that i may have crohns, the forum has lovely supportive folk on here and they have lors ok knowlage, i'm sure you will find the support your looking for xx welcome xx

 

[AckMac]

Wow you poor thing! Nobody deserves to go through what you have

What medication are you on? And what is Hirschprung's disease?

You're definitely in the right spot. People here are amazing.

 

[Sarah50]

Sorry to hear about the suffering you've endured for a long time!! You will find lots of support and a bunch of great people on this forum!

Are you on any medication for IBD? I believe that the right medication, along with a diet that works for you, will help. Let me explain.

I was diagnosed last fall with Crohn's. Prior to the diagnosis, I had bad stomach aches almost every day, the chills, night sweats, achey joints, nausea and occasional vomiting. My doctor put me on Asacol and told me to go on a low residue diet and after about 6 weeks of the meds and diet, ALL of my symptoms disappeared!! So I'm very pro "low residue diet" and actually don't understand why it isn't recommended by more gastro doctors. It definitely works because when I eat food that is not on the low res diet, I get a bad stomach ache. So naturally, I share this info with others, hoping that they'll find the same great results I have.

Others here will recommend the Paleo diet or the SCD diet which are both very healthy. They are just too restrictive for me at this time - I like being able to eat bread, pasta and goodies like cookies or ice cream. You should check out whatever has worked for others and see which one you would like to try, because they can make all the difference in the world with your symptoms. I'll post some links below. Best of luck to you. :rosette1:


http://uvahealth.com/services/digestive-health/images-and-docs/Low_fiber_Low_residue_diet_3.pdf


This diet is also recommended during a flare:

"When someone suffers from chronic inflammatory bowel diseases, such as Crohn’s or ulcerative colitis, a normal diet is usually used, while a low fibre foods diet is needed during a flare-up. Low fibre foods during a flare may reduce abdominal pain, improving dietary tolerance. Once again, raw fruits, vegetables and whole grains should not be ingested during this time."

http://www.fibrefoods.net/low-fibre-foods


One other great link:

"Diet Recommendations for Ulcerative Colitis Flare"

"Diet Progression Following Flares for Ulcerative Colitis and Crohn's Disease"

http://www.ucsfhealth.org/education/...ase/index.html

 

[Jim (POPS)]

welcome to the fourm, you will find the support that you need here.

 

[Simbason]

Wow you poor thing! Nobody deserves to go through what you have

What medication are you on? And what is Hirschprung's disease?

You're definitely in the right spot. People here are amazing.

Hi. Hirschprungs disease is when the rectum doesn't function at all. I had three huge surgeries when I was born to pull my large intestine down and had a bag for a couple of years. I had to go through balloon therapy every week ( they put a balloon up the anus and blow air and the individual has to practice contracting their muscles ). I have always had "D" all my life and has adapted to it quite well but since being diagnosed with Crohns, I have constant pain with the "D" and nausea. Eating just bananas or rice gives me pain. I am off medication presently since my surgery because they removed the Crohns but I have an appointment with my specialist soon. I was on methotrexate. I tried asacol, Imuran, remicade, humira, and others. Nothing helped. I am fed up with doctors because they can not figure this out and I am desperate.