Hi everyone.
I’ve been in a flare from August, on 35mg of prednisone and mostly liquid diet but am still getting a fair bit of pain. I started Stelara on the 7th of a January and haven’t seen any results as such yet. My GI consultant wanted a MRI of my small bowel and urgent colonoscopy to assess my disease activity. (Fecal cal protectin came back before Christmas as being 173) but the pain
Level doesn’t correspond in my opinion.
The last time I had a colonoscopy the pain was excruciating, even with 2 x doses of sedation and gas and air. I explained this to my consultant but he wasn’t concerned. I however have been having nightmares about getting this one done next week, not to mention how it will effect me afterwards as I also had a bad reaction to the sedative the last time.
I was looking for ways to reduce the potential pain online and came across the possibility of a paediatric scope, which the hospital I’m booked into doesn’t offer. So I made an appointment to discuss the possibility with another consultant (primarily a colorectal surgeon) at another hospital who advised an anethetist for the procedure and explained the difficulties of using a paediatric scope. He also questioned the timing of the scope as he thought I should give Stelara more time to work before getting a scope. (N.B. My private health insurance will close my case next week which is why I am booked in so soon, otherwise I will have to wait 9 months for the procedure).
I now don’t know what to do, as I’m still in pain everyday and can’t eat anything really, but I’m not sure a colonoscopy right now is the best decision. I’m scared to question my normal consultant as I understand where he is coming from and I need answers too. Any advice appreciated.
I’ve been in a flare from August, on 35mg of prednisone and mostly liquid diet but am still getting a fair bit of pain. I started Stelara on the 7th of a January and haven’t seen any results as such yet. My GI consultant wanted a MRI of my small bowel and urgent colonoscopy to assess my disease activity. (Fecal cal protectin came back before Christmas as being 173) but the pain
Level doesn’t correspond in my opinion.
The last time I had a colonoscopy the pain was excruciating, even with 2 x doses of sedation and gas and air. I explained this to my consultant but he wasn’t concerned. I however have been having nightmares about getting this one done next week, not to mention how it will effect me afterwards as I also had a bad reaction to the sedative the last time.
I was looking for ways to reduce the potential pain online and came across the possibility of a paediatric scope, which the hospital I’m booked into doesn’t offer. So I made an appointment to discuss the possibility with another consultant (primarily a colorectal surgeon) at another hospital who advised an anethetist for the procedure and explained the difficulties of using a paediatric scope. He also questioned the timing of the scope as he thought I should give Stelara more time to work before getting a scope. (N.B. My private health insurance will close my case next week which is why I am booked in so soon, otherwise I will have to wait 9 months for the procedure).
I now don’t know what to do, as I’m still in pain everyday and can’t eat anything really, but I’m not sure a colonoscopy right now is the best decision. I’m scared to question my normal consultant as I understand where he is coming from and I need answers too. Any advice appreciated.