Hi my name is Sandra, I was diagnosed with CC in 2004 after a year of watery diarrhea, in excess of 30 times daily. The only treatment offered at that time was the Pepto trial. I tried it, made me vomit and did not work. Went into remission for several years. Severe flare up in 2013, had workup and colonoscopy with local GI doc (not the one who originally diagnosed me). Whole procedure was a nightmare from the start. Doc was 2 1/2 hours behind, in a pissed off mood when he came in and introduced himself to me. The sedative did not work, the procedure hurt like crazy(and I told him, he brushed me off). Finally done I went home and had quite a bit of discomfort, 2 days later having emergency surgery due to a perforated colon. 4 surgeries and severe complications later I finally feel about 80 percent ok. However still having pretty serious diarrhea several times per day, but at least I am able to work. During routine blood work I am found to have a hemoglobin of 8, my PCP thinks I may have a GI bleed, I go back to my original GI doc, he recommends upper and lower scoping. Where my small bowel was reattached to my large bowel during my emergency surgery a small ulcer is found. GI doc puts me on Entocort and Iron. I felt great for 2 weeks. Than I started to feel like grim death. GI doc can't figure out why, since my hemoglobin is improving I should not feel so badly, I cannot even work, I have extreme fatigue and weakness, nausea to the point of vomiting. I am urinating every 20 minutes, day and night. I finally research side effects of Entocort, and bam every symptom I have is a side effect. I decide to get off the drug. After a couple days I feel markedly better, I am taking one every other day to avoid any withdrawal symptoms. I still get wiped out after several hours but I feel like a human again. I apologize for such a long introduction. I still have a few BM's daily, and am still taking Iron. I truly feel the Entocort was not right for me.