Hi All
It's been a bit of a crazy journey since diagnosis in January 2016 that's for sure! I'm currently fairly stable on Humira 40mg per fortnight and have my first colonoscopy since November 2015 this Friday. Have been on low residue diet today and liquid tomorrow ahead of the procedure. I'm nervous that they'll see there hasn't been any improvement or worse that it's become worse.
I would say I have fairly bad pain once a week but mostly I think it's my own fault where I've eaten the wrong thing or too much. At my GI appointments recently (to get Humira prescription organised again) I said I was doing really well, which I am (compared to a couple of years ago) but I do wonder if there's something I'm not telling them. Ya know... If I itemised every single bad day then it would be depressing!
I had my MRCP follow up last week and the cysts on my pancreas haven't changed so that's good, they said another MRI in two years to keep an eye on them.
Will check in later
Tammy
It's been a bit of a crazy journey since diagnosis in January 2016 that's for sure! I'm currently fairly stable on Humira 40mg per fortnight and have my first colonoscopy since November 2015 this Friday. Have been on low residue diet today and liquid tomorrow ahead of the procedure. I'm nervous that they'll see there hasn't been any improvement or worse that it's become worse.
I would say I have fairly bad pain once a week but mostly I think it's my own fault where I've eaten the wrong thing or too much. At my GI appointments recently (to get Humira prescription organised again) I said I was doing really well, which I am (compared to a couple of years ago) but I do wonder if there's something I'm not telling them. Ya know... If I itemised every single bad day then it would be depressing!
I had my MRCP follow up last week and the cysts on my pancreas haven't changed so that's good, they said another MRI in two years to keep an eye on them.
Will check in later
Tammy