Hey all.
So I have had crohns for over 2 years now. and throughout the lead up to my diagnosis and since then, I have literally never had issues with constipation. until about 6 months ago I started getting really bad pains and my bowels werent opening.
I had an xray and it showed that I was really bunged up. so my GI doctor started me on some mild laxative sachets (laxido) which you dissolve in a drink.
now I guess I kinda thought that I would take the laxatives for a few weeks and they'd clear me out and I'd be back to normal. but to this day I am still having to take them multiple times a day otherwise I literally cannot poo. Along with this I am taking 3x 100MG Docusate tablets every day to help soften the stools.
I am in constant pain every single day, sometimes I get more severe sharp pains that come and go. I am nauseous and have no appetite. and I now have blood in my stools. sometimes i will get so bunged up that i vomit a lot and cant even keep water down.
so 2 weeks ago I had blood tests and stool tests done and all came back totally normal. so my GI doctor and nurses keep saying, just continue taking the laxatives. I've been taking them for 6 months and had no relief. the tests are showing nothing and literally everyone is now doubting what I'm saying I'm going through because they dont have evidence. I've tried explaining that if my issue is constipation then it wont really show up as inflammation because it's the blockage that is causing the pain!
So I have had crohns for over 2 years now. and throughout the lead up to my diagnosis and since then, I have literally never had issues with constipation. until about 6 months ago I started getting really bad pains and my bowels werent opening.
I had an xray and it showed that I was really bunged up. so my GI doctor started me on some mild laxative sachets (laxido) which you dissolve in a drink.
now I guess I kinda thought that I would take the laxatives for a few weeks and they'd clear me out and I'd be back to normal. but to this day I am still having to take them multiple times a day otherwise I literally cannot poo. Along with this I am taking 3x 100MG Docusate tablets every day to help soften the stools.
I am in constant pain every single day, sometimes I get more severe sharp pains that come and go. I am nauseous and have no appetite. and I now have blood in my stools. sometimes i will get so bunged up that i vomit a lot and cant even keep water down.
so 2 weeks ago I had blood tests and stool tests done and all came back totally normal. so my GI doctor and nurses keep saying, just continue taking the laxatives. I've been taking them for 6 months and had no relief. the tests are showing nothing and literally everyone is now doubting what I'm saying I'm going through because they dont have evidence. I've tried explaining that if my issue is constipation then it wont really show up as inflammation because it's the blockage that is causing the pain!
- so first of all, is this a normal thing for someone with crohns to experience? I.e. chronic or long term constipation?
- second of all, any tips on how to help others understand what it's like dealing with this, especially because it's not something they can physically see?
- and thirdly, who else should I ask for help or what else should I try???