control-freak out of control, that is what I am, and a workaholic as well.
I guess things need to change now.
I was diagnosed with Crohns on Monday, so have just started the roller-coaster ride I guess.
I'm an old newcomer for Crohns, as I have understood most people to be diagnosed before 25, and I'm 41.
But my tummy has been difficult for years. IBS was mentioned in my medical files in 1994 or 95, and the last few years I have had more and more bowel problems, which have mostly been put down to stress.
In the last couple of years I have had both Uveit in both eyes and erythema nodosum on my leg.
In the last year I felt like I was getting more and more intolerant to food groups and in the end I just ate what I liked as my tummy would disapprove anyway.
In December I notices my stools to become orange and slimy, and at the end of January I started throwing up, mostly while sitting on the toilet, quite a challenge that one.
I went to the doctors about a month ago, as the throwing up bit and going so often to the toilet was getting annoying, and as I was on the waiting list for big knee surgery, I couldn't see myself on crutches running to the little room and cleaning up after myself. My bloodworks already indicated trouble for the knee operation (hightened CRP and ESR) and the stool tests indicated blood and >6000 calprotectin, after that a coloscopy was organised pretty fast. (Normal waiting time 16 weeks, I got in within 2 weeks)
Now instead of a planned knee operation this week, I was given Crohns. Not what I wanted nor expected.
I have had more than a year of waiting for the knee operation, and not being able to plan my life, because of not being able to walk far and knowing that I would have a three months rehabilitation after the operation, that would put me out of action.
The good thing is, that I can actually be sick now, and allow myself to take rest.
My body has been screaming at me for months to take it easier, and I just waved it away as mostly stress signs..
I need to learn to listen to my body.. but it makes me feel like a hypochondriac, I need to find a balance.
I have been given 30 mg prednisolon and 2 gm pentasa after they found active Crohns in big parts of the Colon and the whole rectum.
The prednisolon has kept me awake for most of three nights and I am completely hyper, while my body is exhausted, and my brain reacting with it's normal depressed reaction to Prednisolon. More people getting all awake and hyper with these meds?
I am waiting for referral to the nearest hospital for further treatment.
I am fortunate with a supportive husband, but he is quite angry at the moment that I have pushed my body this far (again)...
The not knowing what will happen now? Will the meds help? When will life return to normal? is very hard on this control-freak... Time will tell I guess..
I guess things need to change now.
I was diagnosed with Crohns on Monday, so have just started the roller-coaster ride I guess.
I'm an old newcomer for Crohns, as I have understood most people to be diagnosed before 25, and I'm 41.
But my tummy has been difficult for years. IBS was mentioned in my medical files in 1994 or 95, and the last few years I have had more and more bowel problems, which have mostly been put down to stress.
In the last couple of years I have had both Uveit in both eyes and erythema nodosum on my leg.
In the last year I felt like I was getting more and more intolerant to food groups and in the end I just ate what I liked as my tummy would disapprove anyway.
In December I notices my stools to become orange and slimy, and at the end of January I started throwing up, mostly while sitting on the toilet, quite a challenge that one.
I went to the doctors about a month ago, as the throwing up bit and going so often to the toilet was getting annoying, and as I was on the waiting list for big knee surgery, I couldn't see myself on crutches running to the little room and cleaning up after myself. My bloodworks already indicated trouble for the knee operation (hightened CRP and ESR) and the stool tests indicated blood and >6000 calprotectin, after that a coloscopy was organised pretty fast. (Normal waiting time 16 weeks, I got in within 2 weeks)
Now instead of a planned knee operation this week, I was given Crohns. Not what I wanted nor expected.
I have had more than a year of waiting for the knee operation, and not being able to plan my life, because of not being able to walk far and knowing that I would have a three months rehabilitation after the operation, that would put me out of action.
The good thing is, that I can actually be sick now, and allow myself to take rest.
My body has been screaming at me for months to take it easier, and I just waved it away as mostly stress signs..
I need to learn to listen to my body.. but it makes me feel like a hypochondriac, I need to find a balance.
I have been given 30 mg prednisolon and 2 gm pentasa after they found active Crohns in big parts of the Colon and the whole rectum.
The prednisolon has kept me awake for most of three nights and I am completely hyper, while my body is exhausted, and my brain reacting with it's normal depressed reaction to Prednisolon. More people getting all awake and hyper with these meds?
I am waiting for referral to the nearest hospital for further treatment.
I am fortunate with a supportive husband, but he is quite angry at the moment that I have pushed my body this far (again)...
The not knowing what will happen now? Will the meds help? When will life return to normal? is very hard on this control-freak... Time will tell I guess..