Hi I'm new to the fourms...
I've had CD since I was 14 and it hasn't been managed well...
I initially was on prednesone for a few months and they tapered me off of that and put me on to imuran (100mgs i think)... after a year of moderately working but not as a stand alone, my ped GI took me off of that and put me on remicade... I was on remicade for 3 years till I had a bad reaction and went another year till I swtched to my dad's GI (he has crohn's too) and i got a blood test saying that after 4 weeks from when I had the infusion, I had nothing left... i was neutralizing the medicine... So it was going to be a big waste of time and money to continue it...
since this past april I have been on biweekly shots of humira, and around the 4th of July I had an abscess that formed on the backside of my abdomen wall and I had to get it drained... and everything was going great, but the hole that they used for the drain wasn't healing and I went thru a MRE to see what was happening... it sounded like it fistulized and connected to my last part of my colon... so i was bumped up to weekly shots and 100mgs of imuran to combat it... it was healing as far as i had known till i felt something opened up last week... all it did it was band-aid it up... I got squeezed in after my dads yearly colonscopy on thurs... I am kinda worried about what is going to happen next... I've never been thru surgery and the last one that my dad went thru was 20 yrs ago and was exploratory...
I had to drop out of college this year and try to work when I am up to it... so far its been a month of working and then another month off...
I've had CD since I was 14 and it hasn't been managed well...
I initially was on prednesone for a few months and they tapered me off of that and put me on to imuran (100mgs i think)... after a year of moderately working but not as a stand alone, my ped GI took me off of that and put me on remicade... I was on remicade for 3 years till I had a bad reaction and went another year till I swtched to my dad's GI (he has crohn's too) and i got a blood test saying that after 4 weeks from when I had the infusion, I had nothing left... i was neutralizing the medicine... So it was going to be a big waste of time and money to continue it...
since this past april I have been on biweekly shots of humira, and around the 4th of July I had an abscess that formed on the backside of my abdomen wall and I had to get it drained... and everything was going great, but the hole that they used for the drain wasn't healing and I went thru a MRE to see what was happening... it sounded like it fistulized and connected to my last part of my colon... so i was bumped up to weekly shots and 100mgs of imuran to combat it... it was healing as far as i had known till i felt something opened up last week... all it did it was band-aid it up... I got squeezed in after my dads yearly colonscopy on thurs... I am kinda worried about what is going to happen next... I've never been thru surgery and the last one that my dad went thru was 20 yrs ago and was exploratory...
I had to drop out of college this year and try to work when I am up to it... so far its been a month of working and then another month off...