Crohnie with insane Bilirubin over 100

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Joined
Nov 10, 2022
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Hey guys.
I wonder if anyone else has an issue with insane high bilirubin levels. I was diagnosed with Gilberts back in 2019 during a military draft when I had around 30 μmol/l (normal 3–17 μmol/l). After my Crohn diagnosis and immediate surgery (illeum resection) in 2022 my bilirubin went through the roof! Normaly I have around 80-110 μmol/l! The doctors are clueless about it and dont recommend me anything to lower it down. They say its okay. But people stare at me weird ALL THE TIME, because my eyes are ALWAYS yellow. Always.

Does anyone got some tip, experience please, how to lower it? I tried Zink but it only males my toe nails grow 😀. I am on Infliximab.
 
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