Hi,
I have been diagonosed with Chron's for 12 years now and have definately seen some major peaks and valleys. In my early twenties, I was malnurished, had no ability to keep food in long enough to capture any nutrients and was seriously sick. I lost a major amount of weight (45 lbs). A few years later, I was diagnosed with PSC (primary schlerosing cholongitis). It's liver disease that has an unknown cause but isn't uncommon in patients with Chron's or Colitis. The liver disease continued to effect my Chron's. I was told that my Chron's was to the point that I needed a full colectomy but wouldn't be considered until I received a liver transplant. I wouldn't survive the surgery without it. My misson soon began to get a transplant. After a heart to heart with my doctor, I was told that my time was becoming limited. Left distrot but committed, I was called for a transplant in October, 2008. Soon after, my GI docs were willing to give me the full colectomy. Long story short, I now have a J pouch that works well for th most part. I am hospitalized about once a year with some wacky lab results that affect my liver and kidneys. Overall, I am one lucky woman with a drive for life! I have my ups and downs but couldn't be any more happy with how far I have come. I will continue to struggle at times and thought the forum would be a good idea for support and information.
I have been diagonosed with Chron's for 12 years now and have definately seen some major peaks and valleys. In my early twenties, I was malnurished, had no ability to keep food in long enough to capture any nutrients and was seriously sick. I lost a major amount of weight (45 lbs). A few years later, I was diagnosed with PSC (primary schlerosing cholongitis). It's liver disease that has an unknown cause but isn't uncommon in patients with Chron's or Colitis. The liver disease continued to effect my Chron's. I was told that my Chron's was to the point that I needed a full colectomy but wouldn't be considered until I received a liver transplant. I wouldn't survive the surgery without it. My misson soon began to get a transplant. After a heart to heart with my doctor, I was told that my time was becoming limited. Left distrot but committed, I was called for a transplant in October, 2008. Soon after, my GI docs were willing to give me the full colectomy. Long story short, I now have a J pouch that works well for th most part. I am hospitalized about once a year with some wacky lab results that affect my liver and kidneys. Overall, I am one lucky woman with a drive for life! I have my ups and downs but couldn't be any more happy with how far I have come. I will continue to struggle at times and thought the forum would be a good idea for support and information.
