So basically that is my question. If you have crohns how did you end up with a stoma? Is it a temporary one or is it a permanent one? Why do you have it and how do you deal with having one?
I have to say... about 6-7 years ago if someone would have asked me about a stoma my reply was that Crohns patients dont get them. Its a treatment for ulcerative colitis. Only reason a crohn petient wold get one (in my opinion) was that there had been a complication in a surgery. I now knoe thats not exactly true.. even I still would say that crohns + stoma is an unlikely combination.
My story: In 2006 in result of an operation gone bad I got a temporary stoma. After my operation (on a friday the 13th :shifty-t: ) my stiches connecting the two ends of my intestines that a part inbetween was removed did not hold. Reson being my low health and lack of nutrients and because of those the wall of the intestine was weak. On monday they re-operated me and cleard up the sepsis and I ended up having a stoma. It was closed up 5 months later but for me it was such an positive experience that when I again had an operation in 2008 I asked the surgen if a stoma would be an option again. He said they dont really do stomas "on demand" that only if there is medical reason for it would I end up wit one again. I was lucky (in my opinion) and I did end up wit a new stoma and now it is a permanent one I will have for the rest of my life. Reason I got it again was the surgeon was afraid the situation of 2006 would repeat.
I have short gut (with les then 5'10 small intestines left) so my stoma is extreamly active. I must drink a lot to keep my hydration in balance but drinking = running to the toilet. For me after the close op of my first stoma in 2007 I was entering a rally bad time. All I had was a messed up stomach and diarrheah all the time. It was so hard after the 5 months of having a stoma and feeling good. With it atleast I had some controll of WHEN i had to use the toilet. And I could wait some minutes if needed. So in 2008 when again I got a stoma I desided I would not give it up and in 2010 they removed the "extra" large intestine that had become extreamly inflamed from not being in use and I now only have my own height of intestines. About 1/4 of what i had in 1995 when my first operation was.
So whats your story to having a stoma?
I have to say... about 6-7 years ago if someone would have asked me about a stoma my reply was that Crohns patients dont get them. Its a treatment for ulcerative colitis. Only reason a crohn petient wold get one (in my opinion) was that there had been a complication in a surgery. I now knoe thats not exactly true.. even I still would say that crohns + stoma is an unlikely combination.
My story: In 2006 in result of an operation gone bad I got a temporary stoma. After my operation (on a friday the 13th :shifty-t: ) my stiches connecting the two ends of my intestines that a part inbetween was removed did not hold. Reson being my low health and lack of nutrients and because of those the wall of the intestine was weak. On monday they re-operated me and cleard up the sepsis and I ended up having a stoma. It was closed up 5 months later but for me it was such an positive experience that when I again had an operation in 2008 I asked the surgen if a stoma would be an option again. He said they dont really do stomas "on demand" that only if there is medical reason for it would I end up wit one again. I was lucky (in my opinion) and I did end up wit a new stoma and now it is a permanent one I will have for the rest of my life. Reason I got it again was the surgeon was afraid the situation of 2006 would repeat.
I have short gut (with les then 5'10 small intestines left) so my stoma is extreamly active. I must drink a lot to keep my hydration in balance but drinking = running to the toilet. For me after the close op of my first stoma in 2007 I was entering a rally bad time. All I had was a messed up stomach and diarrheah all the time. It was so hard after the 5 months of having a stoma and feeling good. With it atleast I had some controll of WHEN i had to use the toilet. And I could wait some minutes if needed. So in 2008 when again I got a stoma I desided I would not give it up and in 2010 they removed the "extra" large intestine that had become extreamly inflamed from not being in use and I now only have my own height of intestines. About 1/4 of what i had in 1995 when my first operation was.
So whats your story to having a stoma?