Hi Everyone!
I am new to this forum and I am excited to find a place where I can relate to people who are going through the same thing as me.
I was diagnosed with Crohns Disease about 7 years ago when I was 20. I had always had an upset stomach growing up but never knew the extend of what was really going on. When I was 20 years old my symptoms finally escalated to the point where I was in HORRIBLE pain and was throwing up very regularly. After a few trips to the ER I was diagnosed and found that I had almost a complete blockage in my small intestines.
After figuring out what was going on we then struggled with what the next step was that we were going to take. I ended up taking a quarter off at my college to figure things out. I had a drain put in so my symptoms were not so bad but it was only a band-aid until I would have surgery. I had surgery on Christmas Eve of all times to take out the blockage and could not believe how great I felt when I was done (no more pain!). After healing up from surgery I was started on Humira to put me into remission.
I feel like surgery was the easy part looking back at everything. I went through Humira, Cimzia, Remicade and Entyvio and have not found a treatment that has put me into remission. I have felt like I am the 1% for everything when it comes to drug reactions and I think I have been a mystery to my doctor as well. It has been extremely frustrating to go through so many treatments and have no results. I currently have many areas of inflammation, ulcerations and narrowing in my small intestines from a result of not finding a med that works.
My doctor is now looking at putting me on Leukine to see if that will work but, I feel like I am running out of options. I try to keep a positive attitude but there are some days where I cant help but get frustrated. I know something will end up working, its just a matter of time.
I look forward to reading exploring this site and if anyone has any questions feel free to ask!
Thanks!
Jenn
I am new to this forum and I am excited to find a place where I can relate to people who are going through the same thing as me.
I was diagnosed with Crohns Disease about 7 years ago when I was 20. I had always had an upset stomach growing up but never knew the extend of what was really going on. When I was 20 years old my symptoms finally escalated to the point where I was in HORRIBLE pain and was throwing up very regularly. After a few trips to the ER I was diagnosed and found that I had almost a complete blockage in my small intestines.
After figuring out what was going on we then struggled with what the next step was that we were going to take. I ended up taking a quarter off at my college to figure things out. I had a drain put in so my symptoms were not so bad but it was only a band-aid until I would have surgery. I had surgery on Christmas Eve of all times to take out the blockage and could not believe how great I felt when I was done (no more pain!). After healing up from surgery I was started on Humira to put me into remission.
I feel like surgery was the easy part looking back at everything. I went through Humira, Cimzia, Remicade and Entyvio and have not found a treatment that has put me into remission. I have felt like I am the 1% for everything when it comes to drug reactions and I think I have been a mystery to my doctor as well. It has been extremely frustrating to go through so many treatments and have no results. I currently have many areas of inflammation, ulcerations and narrowing in my small intestines from a result of not finding a med that works.
My doctor is now looking at putting me on Leukine to see if that will work but, I feel like I am running out of options. I try to keep a positive attitude but there are some days where I cant help but get frustrated. I know something will end up working, its just a matter of time.
I look forward to reading exploring this site and if anyone has any questions feel free to ask!
Thanks!
Jenn