mikeyarmo
Co-Founder
How many people here use the Cronh's Disease Activity Index with a doctor or even personally to determine the severity of their disease?
Basically this is a list of questions that assigns different point values to your answers (chosen from a list). A higher score means more severe disease currently.
Personally I have not had a doctor or GI use one on me ever, and I think they really do not make total sense. This is because they ask limited questions, do not consider what is normal for a person (as in has a person always had the same symptoms, but now those are gone and different ones are showing up) and the test assigns a wide range of points for different symptoms. A person can have been underweight with many symptoms but then gain weight and lose most of the symptoms, but gain a new one (like a fistula) and possibly have a worse score than before. Now I am not saying a fistula is not bad or means your disease is getting better, but instead am trying to convey that your score can be misleading, especially when compared with others (instead of what is normal for you). I like to believe a doctor bases their diagnosis for next steps in my treatment based off what has changed since we last spoke, instead of what a test score says.
Does anyone use them (and hopefully have nicer things to say about them that I do
)? If so do you think they are effective?
Basically this is a list of questions that assigns different point values to your answers (chosen from a list). A higher score means more severe disease currently.
Personally I have not had a doctor or GI use one on me ever, and I think they really do not make total sense. This is because they ask limited questions, do not consider what is normal for a person (as in has a person always had the same symptoms, but now those are gone and different ones are showing up) and the test assigns a wide range of points for different symptoms. A person can have been underweight with many symptoms but then gain weight and lose most of the symptoms, but gain a new one (like a fistula) and possibly have a worse score than before. Now I am not saying a fistula is not bad or means your disease is getting better, but instead am trying to convey that your score can be misleading, especially when compared with others (instead of what is normal for you). I like to believe a doctor bases their diagnosis for next steps in my treatment based off what has changed since we last spoke, instead of what a test score says.
Does anyone use them (and hopefully have nicer things to say about them that I do
)? If so do you think they are effective?